When is this an emergency?

[Inmyfeels29]

Has anyone ever saught emergency treatment for severe pain, inability to walk, and bad breathing difficulty?

[shaws Administrator]

I am not medically qualified but I think a visit to the A&E wouldn't go amiss, particularly with your breathing.

Breathing problems can occur when we aren't on sufficient hormones or we might have a sensitivity to the one you take. Also widespread pain is also a clinical symptom and I only got that when I was on levothyroxine.

I've looked at your profile but there's no history, so am assuming you've been diagnosed and given levo?

I wouldn't be surprised if your T3 was too low. As so many doctors are ignorant about symptoms the A&E might not put two and two together. Levothyroxine should convert to T3. We may not be on sufficient, thus not enough T3 or we may not be on an optimum of levo for us to feel well.

My sympathies are with you as I kow exactly how you feel except, thankfully I could breathe so the inability not to do so efficiently is worrying for you.

[Inmyfeels29 in reply to shaws]

I have been trying to get diagnosed but had to leave my quack doc coz he didnt know what ferritin is and wouldn't order the iron for some strrange reason, hes a horrible man anyways i logged a complain, and insurance confusion had, but i am very sick

[shaws Administrator]

This is a link re breathing problems:

web.archive.org/web/2010103...

[helvella Administrator Thyroid UK]

No-one here can possibly say it is NOT an emergency.

I suggest that you get yourself taken to an ER, if possible.

Please post back to let us know how you get on.

[Inmyfeels29 in reply to helvella]

Will do thank you, my sis is taking me today

[BonnieT]

My legs were so bad and pain so great, I sat down halfway up a flight of stairs and just cried. I had seen so many doctors and no answers. I felt it was in what I was eating or nutrients I wasn't getting. I decided to try gluten free again. In three days much relief. It's worth a try. I find it difficult to remain on it but stay as close to it as I can. What can it hurt to try it for theee days. Take away breads and add lots of fruits and vegetables. Watch the labels of what you purchase. Gluten is in everything. Also, add B12 if you're not taking it and blood results show you're low in it.

[Inmyfeels29 in reply to BonnieT]

I have been eating only chicken salmon and greens, but still this gets worse 😢

[BonnieT in reply to Inmyfeels29]

What about supplements? Are you low on any vitamins or minerals?

[BonnieT]

I also experienced shortness of breath from climbing a flight of stairs have to rest after completing any household chores. Just cleaned my bathroom and have to rest before vacuuming.

[Inmyfeels29 in reply to BonnieT]

It happens when im sitting as well 😫

[BonnieT in reply to Inmyfeels29]

Have you seen a pulmonary doctor?

[shaws Administrator in reply to Inmyfeels29]

You have to have a new blood test for a Full Thyroid Function Test, not just TSH and T4. It should be TSH.T4,T3, Free T4, Free T3 and thyroid antibodies. Phone surgery and ask if he will do them and if not you will have to get a private test from one of our labs.

thyroiduk.org.uk/tuk/testin...

I think it's relatively easy to do a home test but make sure you drink plenty of water the day before.

[BonnieT]

I have at least 12 specialists I see and no answers. I've just switched primary care doctors. I like the new one. She's willing to look a little further. The last one started treating me as a hypochondriac. The pain and other problems are real.

[Inmyfeels29 in reply to BonnieT]

Oh thats terrible, i now know the srruggle of Dr s and being like this, if they do beleve you, they don't really care

[Hidden]

I do not know if this is relevant to you, but with my first goitre, I had constant fatigue, ie I wanted to get about a lot faster than my legs would carry me. Also had difficulty breathing, was often unable to say a complete sentence in one go. The restriction in my throat and difficulties breathing caused several chest infections and bouts of pneumonia in 1989. Only solution was partial thyroidectomy. There was no associated pain.

Hope you find the correct diagnosis and an early solution to your problems. In the meanwhile make sure to breathe deeply whenever you can. Pneumonia is a killer if your body is weakened in any way.

[Inmyfeels29 in reply to Hidden]

Thank you, i am sorry to hear you got infections like that, i hope you're much better now, i hope to be better soon

[BonnieT in reply to Hidden]

Thank you Panda321

[Inmyfeels29]

Thank you all, my sis is taking me to the best rated hospital in the area, she said shed get me treatment, or do her best, she has a lot of ER experience, will update when possible, thank you all, wish me luck

[BonnieT in reply to Inmyfeels29]

Hugs and prayers.

[Granny56]

Breathing difficulties should always be assessed by a doctor, keep going until someone takes notice.

I had similar symptoms to you, it turned out to be a very low vitamin D.

[Inmyfeels29 in reply to Granny56]

I've been deficient in this b4, maybe i am again, but they wouldn't check when i asked

[Inmyfeels29]

Well the ER said there is no thing wrong but liw potassium but all they did was a freet 4! Im so mad!

[shaws Administrator in reply to Inmyfeels29]

The A&E discharged me after an overnight stay due to severe heart palps. Had me running on a treadmill etc. and discharged me with 'probably viral with a high cholesterol'. High cholestoral is a clinical symptom but they know none these days.

Little did I know until a week later I had a TSH of 100. I was very hypo. I had also seen private doctors and got a different diagnosis from all of them, except hypo.

[Granny56 in reply to shaws]

Wow ... that's scary, did you make a formal complaint?

[shaws Administrator in reply to Granny56]

By that time I was so very unwell that I cried when I, finally, had a diagnosis. I keep meaning to write to all of them but haven't got round to it yet. Little did I know that I had another battle facing me and that was feeling much worse on levo that took some time to resolve as we're told levo is all that is prescribed.

I've now overcome that thanks to TUK and other websites so that's why this forum is so helpful as it wasn't up and running at the time. However, I do feel for people who don't have access to internet as they may be wondering why they aren't improving and doctor telling them they're bloods are 'normal' or fine or giving them other prescriptions for the 'symptoms' rather than a proper dose of thyroid hormones which suits them.

[Granny56 in reply to shaws]

You have been through such an ordeal. Therefore, I admire your commitment to helping others after such a personal struggle.

I hope you are in a balanced state now and feeling well, thyroid disease is such a terrible illness.

Take care

X

[shaws Administrator in reply to Granny56]

My husband might not think I'm in a 'balanced state' but I am well now. I think what puzzles us most is that doctors seem incapable of knowing how to prescribe and so many people must be so very unwell

Unfortunately it isn't a quick fix as it has probably taken years before finally being diagnosed.

[Granny56 in reply to Inmyfeels29]

Do you have a copy of your blood results? A low potasium can be dangerous, did they do an ECG?

[Inmyfeels29 in reply to Granny56]

Yes! The nurse was very nice and printed it out for me, what do i do wif it? My potassium was 3.0

[Granny56 in reply to Inmyfeels29]

Can you please post all the results for us to see?

[Inmyfeels29 in reply to Granny56]

Absolutely! I will make a new thread with lab results! Thanks!

[Granny56 in reply to Inmyfeels29]

nhs.uk/conditions/Potassium...

[Inmyfeels29 in reply to Granny56]

Ive been eating chicken salmon and veg mostly due to my sinuses i cut out a lot of crap, but i eat 1x a day as i have suffered with eating problems throughout my life, ok off to post labs

[Granny56 in reply to Inmyfeels29]

Add some bananas

[Inmyfeels29 in reply to Granny56]

Okie dokie

[Inmyfeels29 in reply to Granny56]

I posted all the labs i have possession of atm, i have to call my social worker top get the ones from my previous Dr, i had to complain against him and his office but now I'm afraid to call and ask if they have the labs he did :/

[mauschen in reply to Inmyfeels29]

Can you send me the link please

[riannabri]

Yes all of these things, I could not walk for the pain in my legs, I could not breath, I became totally disabled to a point that I had to be cared for and thought it was my thyroid (Hashimotos) then 2 weeks ago I was diagnosed with 3 other autoimmune Diseases (I was given a booklet called "The Big 3") - Hughes/Lupus/sjogren's at the London bridge Hospital by Dr Lanham and Prof Hughes and was told once you have one autoimmune disease they can all come along.........

[Inmyfeels29 in reply to riannabri]

oh wow! Very sorry to hear! When i see my new primary should i ask about autoimmune diseases? I've never thought to ask about them b4, i dont know why. More blood work huh? I wish they could just look for everything so i can keep some blood! Thanks so much!