Thyroid UK
87,721 members102,418 posts

advice and help please

hi new here but hoping for some help. Have been under for ten years with no problems as such until last January, my thyroid has gone on levo 125 every gp sent me to a so called thyroid specialist who I waited a year to see and he wasn't interested in the slightest, he did nothing except did a tsh test which has come back gp called me and said she couldn't believe it was that high so did another tsh test, came back 19.5 still and low ferritin levels. I feel so ill just want to see someone who knows what they are's what id like to know please.1.....what bloods do I need testing.2.....does anyone know a good doctor in the west midlands area...3.....could I self medicate and where from if you could pm id be due to go back next week to gp,she said shed support me in finding and referring me to someone or to be honest im that desperate id go private.can anyone help thanksyou in advance

7 Replies

Hidden The thyroid tests you need are




Thyroid peroxidase (TPO) Antibodies

Thyroglobulin (TG) Antibodies

And as your ferritin is low your GP should do a full iron panel plus

Vit D



If your GP won't do them, and the chance of getting FT3 are extremely slim, and TG Antibodies likewise, then you can get all those thyroid tests plus vitamins and minerals with a home fingerprick blood test (or blood draw if your surgery is willing) from Blue Horizon

Optimal levels of vitamins and minerals (not just 'in range') are necessary for thyroid hormone to work.

Wait until you have full tests results and see what your GP says before thinking about self medicating. Post your results on here for members to comment.

1 like

hi seaside Susie thankyou so much for that advice.its so frustrating that no one seems to be able to help.



Hasn't your GP prescribed Levothyroxine?

Email for a list of member recommended endocrinologists and practitioners.


hi clutter yes im on 125 of levo but as I say my thyroid is all over the gp cant control it that's why she referredd me and the specialist did nothing....ive emailed louise but they are all miles away.i was hoping there may be someone around the west midlands area thanks


Hidden As your thyroid is all over the place, I'm surprised that your endo hasn't tested antibodies. He's probably a diabetes specialist, most of them are hence they don't have a clue about thyroid.

One of our members lives somewhere around your area and runs a support group, I'm sure she won't mind if you contact her - member name Chippysue and her profile page is here


Yes please let me have your email address - send it to me by message - next meeting is 4th March - Solihull


Hidden Hopefully you've seen Suze's reply above. Maybe you can get to the next meeting or you can contact her by private message to see if there are any specialists in your area.


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