Since being diagnosed with Graves Disease/Hyperthyroidism back in August 2015, I have been on block and replace treatment. I was initially on beta blockers to control my symptoms (heart palpitations, tremors, etc) and within a few months settled on a daily dosage of Carbimazole (40mg) and Levothyroxine (75mg). I actually started to feel normal, apart from the dramatic increase of weight I seem to have put on.
Since April 2016 my levels were within "normal" ranges and my endo was very happy with my progress. In December 2016 my endo noticed I was going underactive which explained why I was now so tired but aside from that he said I could have a trial of coming off my meds to see how I do. So we planned I would come off my meds at New Year after upping my Levo to 100mg until I came off my meds. I was over the moon to hear this news. I came off my meds just before New Year and have now been off them for 4 weeks.
I have had the odd pang of anxiety (tight chest) and one or two palpitations although my heart rate seems to be fine. I figured I was just adjusting.
I had my review on Thursday with a different endo (there are about 4 of them and I see a different one every time). I feel like he might as well have just slapped me across the face when I walked in to the room. The first thing he asked me was how much Levothyroxine I was on and when I told him I was no longer taking any meds he was very shocked. I told him to read my notes, sure enough it was there in black and what I had agreed with the other endo in December. He then tells me he would never have allowed me to come off my meds and that my antibody level was not checked before coming off my meds. I was pretty distraught to hear this news. He then told me that even if they came back normal, judging by current levels then it's not a case of IF my graves would return but WHEN and that I am underactive. I just wanted to cry. He then asked me what I want to do and I said well I will cross that bridge when I come to it and he told me I am now at that bridge. So I had to give more blood and I will hear from him this week to go through my options. What do I do?! I am 31 (nearly 32) hopefully wanting to start a family next year too. I don't fancy RAI or the surgery so I feel like I am stuck between a rock and hard place and not to mention how shoddy I feel with my 3 stone weight gain from all of my treatment.
I hope someone takes the time to read my post and offer any advice they may have, I just want some guidance as I really don't know what path I want to take.