Hello all, I'm a 31 year old man, and I just agreed yesterday to RAI in a fortnight, but am having second thoughts based on potential side effects of taking thyroxine forever, as well as the risks of RAI.
I was diagnosed as overactive thyroid c. 3 and a half years ago (at a similar age to my Dad when he was diagnosed) and put on 40mg Carbimazole which was gradually reduced down to 5mg until I came off the meds about a year ago, so after 2 years of use. It only took about a month for my levels to shoot back up again though and I was back on Carbimazole. A few months ago the 5mg made me underactive slightly, so my dose was reduced to 5mg every other day.
I'm torn though as I keep being told how RAI is safe, etc, but should I be trying to come off Carbimazole for a second time? That said, if it didn't work the first time, isn't it quite likely that my thyroid levels will shoot up again at some point down the line? Even if it isn't for some time? If so I'd rather get it zapped as the overactive symptoms I had for years were horrid, and also Carbimazole use seems to have ended up with me having recurring cold sores. This is having only ever had a handful in my entire life- I'm on my second of 2015 already!
I'm torn now between wanting to be rid of Carbimazole, the risks of RAI, and the concern over it potentially coming back if I was to try and be weaned off the meds again. Plus liek I said, recurrign cold sores aren't the most enjoyable side effect...
All thoughts really appreciated!