Tomorrow we go for additional testing. I am so impatient and feel helpless.
My son has been experiencing fatigue and weight gain for the last few years. He works out over an hour a day religiously with a trainer. He wants to be in the NFL. He had blood work done in 2013 that showed T4 high but TSH within normal range, again in 2015 the same T4 higher than the time before TSH lower than 2013 but still within normal range, and the doctor brushed it off although his symptoms of fatigue and sluggishness and attributed them to his busy school and athletics schedule. Now 2016 and we go for his 12 year check up he is now at 140lbs but still at 5 ft 1in, having only grown 2 inches in the last 3 years. No where near puberty. Dad is 6ft 4in, mom is 5ft 4in. His labs this time... I'll attach in a pic, but T4 higher than before, and TSH lower than last year and finally low enough to trigger abnormal. A1c showed high again, and again total cholesterol was even lower. We finally got a referral to pediatric endocrinologist who saw his labs yesterday and called at 4pm requesting us to be there today at 830am. They retested his a1c at the appointment and it was within normal range. She felt his thyroid and said it felt enlarged, inflammed, or something abnormal. Didn't give much explanation to the lack of growth but said they dont really worry about it until age 14. Given his goals that is hard to wait 2 more years to see what the deal is .. She ordered some additional testing to be done tomorrow morning as soon as he wakes up as apparently the cortisol levels are the highest apon waking, so I've preregistered him at the lab at the hospital and have clothes laid out so as soon as he wakes up I can take him to get his blood drawn. My fear is that his TSH will show normal in the morning since it was only slightly out of range and they won't want to do anything! My mom had hypothyroidism that turned into thyroid cancer in adulthood and my mother in law has hypothyroidism treated with meds. I would think given my son's symptoms he would be hypo but the labwork is suggesting hyperthyroidism and I don't understand! The doctor said if he was healthy and on track his full height potential should be 6ft. So now I'm left to worry about what these new labs will say, hoping they say nothing is wrong but at the same time hoping they say something that will explain why he stopped growing. Sorry for such a long post! Can't sleep and just wish we knew what was going on!