GF info for non hashi hypo

[speckles70]

is there any evidence to suggest non hashi hypo's should try going GF?

[Marz]

Many people suffer with gluten sensitivity without having Hashimotos. Check out Dr Tom O'Bryan.

[LaurieRose]

I have read somewhere that it will help, it certainly wouldn't do any harm, except to food budget. Apparently selenium is good for helping people with thyroid problems. Also a diet plentiful with fruit and veg and green tea.

[TupennyRush]

Hi there

I have non hashis hypo and have been intolerant to wheat for years. I decided to try the Paleo cure and am finding it great to lose weight (I lost about 10 lbs in 4 weeks and am now averaging about a lb per week which is phenomenal compared to before)

I did feel terrible the first 4 weeks on it but now feel better than I did before the diet.

But, I've realised that this is an earing plan and I need to stick to it for the rest of my life not a short term diet..

[TupennyRush]

Forgot to say - it is gluten free by virtue of not having any grains....

[Hidden]

I think its a good idea to be gluten free, without any health issues. Gluten is indigestible and will eventually destroy the villi in the small intestine where all the nutrient absorption takes place, so its a good idea to keep those little chaps in good health. I did read/hear somewhere that it can take a year to get rid of the effects of gluten but it does seem rather a long time. My friends husband, who has just turned 80, has been diagnosed with coeliac disease - never heard of anyone that old getting it.

[Marz in reply to Hidden]

He has possibly had it for many years 😊 These hidden issues take years to appear - as I know to my cost ...

[Hidden in reply to Marz]

I think you are right, I don't know what particular issues he has had but no doubt it creeps up on you, hope yours have now resolved.

[Marz in reply to Hidden]

I had serious gut issues that resulted in lots of surgery - which resulted in the Terminal Ileum being removed. Sadly I was not told that is where B12 * struts its stuff * .... and that I would need B12 injections for life. Started them three years ago .... maybe too little too late after 43 years since the surgery - but I journey in hope

[Hidden in reply to Marz]

Oh my goodness Marz, that's rotten luck and even worse you were not told about B12, so presumably you were just left to find this out yourself? Is it only at the terminal ileum that B12 is absorbed or does the rest of the ileum have a part to play. It just shows how everyone needs to educate themselves about the consequences of surgery, or anything else come to that. My best wishes come to you for the future.

[Marz in reply to Hidden]

B12 is extracted at that point and works with bacteria and returns to the liver through the blood for future use. Am not sure how much of the Ileum is involved - but I lost quite a bit - and even more at a later stage. I had ileo-caecal TB and later Crohns. ( BCG damage - who knows ? ) So when you think of all the folk with IBS/Crohns/Colitis/Diverticulitis - is it any wonder there is a serious issue with B12. Then add to that list those that are on PPI's and have low stomach acid. Along with thyroid it is another area of medicine that needs a good shake-up. There is good work going on behind the scenes in both cases.

When I look around me I feel incredibly well/fortunate and having had these issues for most of my life - I am able to overcome most of them. Perhaps being unwell so young becomes a gift as you start learning sooner !

Do you have the book - Could it Be B12 ? - by Sally Pacholok. Every home should have a copy

[Hidden in reply to Marz]

I have never heard of ileo-caecal TB - sounds like it is very rare. Every other person you seem to come across these days has some sort of gut issue. I had a duodenal then gastric ulcer about 25 years ago (which never returned after I gave up my job) and then 13 years was diagnosed with UAT and Hashi's about 5 years ago. I just jogged along with the UAT, never had any problems on levo, but when the Hashi's turned up it completely knocked me for six and I then sat up and paid attention to what was going on. I really must look into B12 deficiency as I just might be missing a trick, so perhaps I will invest in Sally Pacholok's book - something to read over the Xmas holidays.

Thank you Marz, very interesting information and much appreciated.

[Debsoxford]

I do have hashimotos so went GF(about 6 weeks) do feel better and like Tupenyrush have lost weight it is difficult at first I still really miss toast but I'm getting into rice crackers! I haven't tried GB yet as I may just pug the whole lot in one go!! And also it's what they put in it instead that has made me a bit apprehensive to buy it I enjoy cooking so have found new inspiration with different ingredients my husband is a fussy traditional eater but he liked fish rolled in coconut flakes (played havoc with his teeth/plate) though

Good luck

[speckles70]

thanks you all for the fab advice and think I may try going gf after Xmas 😁 x

[humanbean]

I was tested for coeliac disease several years ago with an endoscopy during which biopsies were taken. I had blood tests too. I was told the results were negative so I carried on eating gluten.

It wasn't until five years later that I decided to try going gluten-free (very reluctantly) as an experiment because I had so many health issues which weren't improving despite my best efforts.

I got worthwhile benefits within a week. My vile temper vanished and, although it took longer, my balance improved. I have come to the conclusion that I probably have gluten ataxia. I have never sought a diagnosis - my problem is self-diagnosed.

verywell.com/what-is-gluten...

jnnp.bmj.com/content/74/9/1...

I've never tested positive for thyroid antibodies.