Gp or Endo: Hi, who has been diagnosed been by... - Thyroid UK

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Gp or Endo

redchud profile image
8 Replies

Hi,

who has been diagnosed been by Gp or Endo?.

If you have been diagnosed by Gp have they then referred you to see an Endo or do you need to see an Endo, or can a Gp carry on dealing with you, or would you need to be seen by an Endo.

Thanks for reading and help.😊

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redchud profile image
redchud
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8 Replies

Apparently GPs are supposed to be able to diagnose and treat. You couldn't make it up.

If you kick up a stink with your GP then you may be referred to an Endo but many of us have found them to be equally clueless.

Fruitandnutcase profile image
Fruitandnutcase

I was diagnosed by my GP. I have Graves Disease, I saw my GP one day, had bloods taken the next and I came in the next day to find a message on my phone to say I had a very overactive thyroid with antibodies, the doctor had left a prescription for carbimazole at reception fir me, she had made an appointment with an endo for me and would I go back in four weeks for more blood tests.

It took three months before I saw the endo but after the four week blood test I got a letter from her asking me to double up on the amount of carbimazole I was taking and telling me to get more from my GP. My GP and local hospital file share and work together.

I think ( and I'm not medically qualified) that you will definitely be dealt with by an endo if you are overactive or have nodules or anything that isn't straightforward.

Some people who are hypo only seem to be seen by their GPs but as I'm not underactive I don't know much about that. I imagine you could ask to be seen by an endo.

I've been told that should I relapse then I will be given radio active iodine which will likely as not make me underactive, then once I've had the RAI I will be dealt with by my GP and I will no longer be the hospital's responsibility.

I don't want that because I'm not confident that my GP would give me enough Levo or whatever it takes to make me feel well.

Like I say that's just how I see it, I'm not medically qualified and I'm someone will come along with more information.

Clutter profile image
Clutter

Redchud,

Primary hypothyroidism is usually managed in primary care. If the patient doesn't respond to Levothyroxine after being optimally dosed the patient may be referred to endocrinology. Endocrinology will discharge patients to primary care when they feel the patient is euthyroid. Secondary and tertiary hypothyroidism, hyperthyroidism and thyCa should be managed by endocrinology.

Lulu_65 profile image
Lulu_65

My gp diagnosed me.... Told me in a phone call that lasted all of one minute! I have not actually seen a gp face to face since diagnoses. As for an endo referral... My gp doesn't even think I should have any symptoms never mind wasting their time sending me to see an endo. Not that I'm bitter or anything 😀😎

dotti profile image
dotti

I was diagnosed by my gp 16 years ago he said well you have under active thyroid handed me a print out from his computer and said you will be on thyroxine for the rest of your life the print out will explain it.

I was rather shocked!!! eventually 12 years later i saw several endos private and n.h.s a total waste of bloody time all of them totally crap and thats putting it very politely.

Dotti x

redchud profile image
redchud

WoW really shocked about the way we are diagnosed and really left to it!

Speechless

Singoutloud profile image
Singoutloud

I was diagnosed by my gp and started on levo but didn't get any better. After a number of regular visits he agreed to refer me to the hospital. I thought 'great I'm finally going to see an endo'

Joke was on me as the letter came from the hospital with a referral to the Dementia Clinic! Needless to say, I rarely see my Dr now and prefer to treat myself.

BeansMummy profile image
BeansMummy

I was diagnosed by my old GP, and prescribed levothyroxine, but also referred to an endocrinologist. I assumed that was normal procedure, but the endo told me later that the referral was because I had "so many symptoms". I had the same symptoms as everyone else, nothing more. Neither the endo or GP seemed to understand Hashimoto's - I still can't get my head around an endocrinologist being like that.

The endocrinologist wanted to discharge me after a few years as she said that my (old) GP could manage my Hashimoto's. My endo wasn't very good at managing it to be honest, but my GP was even worse - I told the endo that the GP wasn't capable of understanding what a TSH test result meant, let alone treat it properly, so I wasn't discharged. I am pretty sure I will be kicked out after my next appointment when I tell the endo all about my self-sourced T3 :)

I'm not very keen on endocrinologists or GPs any more :(

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