Thyroid eye diesese

[christina]

Hiya , after 2 different eye hospitals and Drs trips , my new fantastic endo as finally diagnosed me with ted , I was wondering if there are any support groups out there as I would like to meet up with people with it as it's something that I have had a very long time but never knew what it was till now

[Miki80]

Hi Christina, I ended up in Moorfields A&E after waking with bloodshot, sore eyes and distorted vision been told I have early onset TED. Did they say why you have it?

[christina in reply to Miki80]

No , I've had been under active for ove 20 years but been suffering bad with dry eyes and fuzziness close up but two hospital visits nev r picked it up , I got swelling to me optical nerve and they still didn't pick up on it , it was only by chance I mentioned it to me endo that she knew

[Miki80 in reply to christina]

Brilliant! Glad she knew I've been dx with dry eyes as well but TED was only picked up when I mentioned all my thyroid related issues

[christina in reply to Miki80]

I don't have redness or bulging eyes , I have. A srange blurry vision and when I rub them it goes and it's horrible , and these dry all the time , what do u take for them ?

[Miki80 in reply to christina]

My eyes have been declining since last yr my vision would suddenly blur or I couldn't see straight was told my astigmatism has worsened and to wear my glasses at all times then suddenly they were sore and bloodshot. I don't have the bulge either thankfully and just been given drops.

Is you're thyroid optimal?

[christina in reply to Miki80]

Hiya , yes I'm at optimal dose but still neve feel well but my eyes are my main problem now as they affect me every min or every day

[Miki80 in reply to christina]

Hmmm interesting as we're led to believe we only get such complications when far from optimal- like me lol

Good luck