Botox for thyroid eye diesese : Hi I have just... - Thyroid UK

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Botox for thyroid eye diesese

Rush2112
Rush2112
17 Replies

Hi I have just got my appointment through for next month to have Botox in my eyes didn't think much of it but I have now got the jitters has anyone had it done will I need to take day off and does it hurt and were exactly in the eye do they put it

I was probably told when it was suggested but it obviously didn't sink in

17 Replies
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shaws
shawsAdministrator

I cannot help you personally but this is an excerpt from a link for information:

Nevertheless, although mild eye abnormalities are common in patients with Graves' hyperthyroidism, many patients with mild thickening of the eye muscles or mild eye irritation will never develop significant clinical difficulty with Grave's eye disease. Furthermore, there is no scientifically validated intervention, diet, or medication, other than potentially toxic immunosuppressive drugs or radiation, that will reduce the chance of developing progressive Grave's eye disease.

mythyroid.com/eyedisease.html

botoxblepharospasm.com/

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Rush2112
Rush2112
in reply to shaws

Thanks shaws

My eye doctor recommended them as my eyes are getting worse quickly he did tell me it wasn't to-cure them but he is hopes it will stop detiriation untill my thyroid is under control I don't like look of possible side effects though it would be nice to hear if someone has had it done and if there were benefits

But. From what I can find out it's not a common treatment

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shaws
shawsAdministrator
in reply to Rush2112

If someone has had this treatment they will respond and I hope it works well for you.

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glo42

My husband has had 3 treatments with Botox which have been really beneficial in calming a skin condition that he has suffered with for many year. A new Consultant recommended Botox injection and we are pleased that she did as it is doing what she said that it would and hubby is more comfortable.

I haven't heard of anyone having Botox for eye problems so can't really comment but my neighbour had Botox yesterday for an ongoing Crones illness and hoping for a good result. This seems to have benefits and I hope that it will work for you too.

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Silver_Fairy

Cant say Ive ever heard of the treatment. All I was offered (and only when I asked) was 'cosmetic' surgery to take away the over eye 'bags' which the Ophthalmologist said were due to stretching of the skin by the fluid.

What is the botox meant to do?

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Soldieress

Hi Silver_Fairy, My eye lids are quite puffed up/swollen in the morning (along with dry eyes in the morning) and I have horrible eye bags. My eye lids are not puffy before I go to bed. I have the Hashimoto's condition and hypothyroidism. I wonder what happens at night for them to get puffy. Do you have Grave's or Hashi's?

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Silver_Fairy

I have Graves. My 'bags' are above my eyelids, next to my nose, err if you get what I mean!

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Soldieress

Thanks for replying Silver-Fairy. I know where you mean. My eyes puff up above the eyelid just above the eyelashes in the morning. The bags under my eyes are always there. If anyone knows the reason I would like to correct it because the skin above my eyelid rests on my eyelashes now which is uncomfortable and doesn't look very nice.

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Silver_Fairy

Mine, above my eyes is always there. The Ophthalmologist at the hospital said that the fluid build up had stretched the skin, which hadn't sprung back (because of my age, cheek! *chuckle*)

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Rush2112

Silver fairy

Ca you belive this I'm not sure he did tell me but it kind of went in one ear and out the other it is something to do with stopping my eyelid retraction from becoming worse I think I might have to do a bit off research before I go ahead I know my eyelids don't move as they should when they get you to follow there finger in front of your eyes and also I can't look up without it. Being uncomfatable and although I don't have petruding eyes I do have a starey look

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Silver_Fairy

Yes my eyes 'stare' too, hate it! My TED is mild apparently, I dont have too much restriction.

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tilly83

I once had botox for fixing my lines, absolutely wonderful. No side effects apart from looking healthy and relaxed. It's used on children with cerebral palsy and for people with Bel's palsy. Enjoy it!!

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Rush2112

Don't think it will fill out any lines unfortunately from what I can see online it is put directly into the insides of your eyelids

But I could live in hope lol

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serenfach

I have botox (on the NHS) as I have a facial spasm. I have injections in 3 sites every 3 months, and it works for around 2 of those months, stops my eye flickering. It takes about 2 weeks to kick in and has finished about 2 weeks before I am due another treatment. To put it simply, it is wonderful! It means I can read, drive, not look like I am winking at strange men. The injections can sting a bit, but it depends who does them. It took a while to get the dosage right (that sounds familiar somehow....) so dont expect miracles the first time, but it has never affected my Hashis. I actually look forward to my next treatment and as it is visible, I am believed, unlike the thyroid stuff! Good luck!

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BLizzy88

Hi,

In reply to this, I know somebody who has this treatment regularly and no complaints, with much success. Also when I was having surgery on my eyes (severe TED), there were patients on the ward who were having Botox injections in the eyes, and none of them seemed remotely concerned. Having suffered the devastating effects of severe TED, I would recommend you take every precaution to minimise the damage, until your Thyroid is under control.

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Rush2112
Rush2112
in reply to BLizzy88

Thank you blizzy88

I'm a bit of a coward but if it's going to help I know I must do it it must be scary having servere ted

I have noticed my eyes getting worse almost daily

Hopefully this will help

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BLizzy88
BLizzy88
in reply to Rush2112

I was just as scared as I know you are believe me, but I was shocked by how unintrusive it actually was. I didn't have injections, I had corrective eye surgery, as my eyes were paralysed by the hardened fat, that wraps itself around the eye muscles. My condition had been misdiagnosed for years and the result was dramatic as a result. Dont put off this early catch, with the right treatment now, you can hopefully avoid the worst of it :) x

wishing you a speedy recovery

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