Thyroid UK
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Has anyone had a pituitary tumours?

Need some stories from people to help me as I'm completely negative and worried that this is going to be the end of me :(

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Dawnuk,

Your doctors wouldn't want to wait six months to re-examine you if the tumour was likely to be fatal.

There are posts on pituitary tumours in healthunlocked.com/search/p...

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thank you will have a read through xx

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Dawnuk,

If you don't feel reassured after reading some of the posts try contacting your endo for reassurance. It's no good being in a high state of anxiety for six months when your endo can reassure you.

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its just a doctor i am seeing, my anxiety is so bad usually so this is tipping me over the edge :(

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My auntie had a pituitary tumour.

Please don't worry about it. They know it's there, they know what they are doing. Pituitary tumours tend to be benign. This will not be the end of you

Lu xx

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My husband has a big one, he's on a drug to reduce prolactin levels, otherwise no treatment.

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Dawn, I also had a pituitary tumour in 2000, with high prolactin levels too, which was apparently caused by high doses of antidepressants (prozac). I was also given medication, and the tumour went away and has never troubled me again..so think of the positive stories shared here. As Lulu said, these tumours tend to be benign and easy to treat..think positively!!!x

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Sue Perkins announced last year that she was diagnosed eight years ago with a pituitary tumour.

huffingtonpost.co.uk/2015/0...

But my other half had an operation on his pituitary for a completely different reason to yours and it was quick, effective and you'd would never have know he had the surgery was back up on his feet a day or so after the op.

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Quite. And you can't imagine "Mel and, umm, oh dear... Poor Sue, she was a wonderfully warm host". She simply has to continue to live and - seemingly - keep surprisingly well for Mel's sake. :-) As we expect of dawn, too.

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Thank you for posting the link. It's very informative and has given me much more hope that my daughter's pituatory tumour will be benign and hopefully treated with drugs.

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Hi,

My daughter has been told that she might a pituatory tumour following have a CT scan for headaches. She was told 3 weeks ago and we cannot get to see a local endo until 14th December. However, pituatory tumours tend to be benign but tend to be removed because they can grow and press on the optic nerve causing sight problems.

I had thyroid cancer removed 3 years ago and would seem that there are endocrine problems within my family. Once we've seen an endo for her I think we'll need genetic screening.

Try not to worry and if you need to PM me please do so.

Take care x

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So sorry, can't imagine. Hope this may be of some help. They suspected I had a pit tumour, but MRI turns out I don't but I found a great pit tumour support site on Facebook while I was going through all the testing. There are people from all over the world and very helpful and supportive. Here's the link:

m.facebook.com/groups/39119...

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