Unknown: For the past several years I have been... - Thyroid UK

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Suekate profile image
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For the past several years I have been seeing many different doctors due to an accident at work which caused two of my discs in my neck to be repaired. I have come to that all right but I have days where I do nothing but sleep I feel awful and do not know why I have a daughter with autism and it takes a lot of my time to feed clothes and care for her, she's 31 years old. A day like today I got up got her breakfast she and I lay down on my bed to watch TV. I was sleep for 20 minutes, woke up feeling horrible. Made and fed her lunch and went back to bed and fell asleep again until my husband came home after work. He took a long time to wake me up he was afraid that something was wrong. What's going on with me? My doctor says my thyroid is OK.

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Suekate profile image
Suekate
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10 Replies
greygoose profile image
greygoose

OK is just an opinion, not a medical diagnosis. You need to get hold of your results and see for yourself. It is your legal right to have a copy, under the 1998 Data Protection Act, so ring the surgery and ask for them to make you a copy which you can pick up. They cannot refuse.

When you get them, post them on here - with the ranges - and we will be able to tell you if your thyroid really is alright, as your doctor claims. They don't always know, I'm afraid. It's possible that he hasn't done all the right tests, and/or hasn't interpreted them correctly. :)

SeasideSusie profile image
SeasideSusieRemembering in reply to greygoose

Ha ha Greygoose, you've got quicker fingers than me tonight :D

greygoose profile image
greygoose in reply to SeasideSusie

It's just being in the right place at the right time, Susie! lol

SeasideSusie profile image
SeasideSusieRemembering

Suekate That sounds so familiar, it's how I was over 40 years ago before I was diagnosed hypo, sleep, sleep and more sleep and I had 4 year old and a toddler.

Best thing you can do is ask your surgery for a print out of your thyroid test results, make a new thread and put the results, with reference ranges, (may be in brackets after the results, but very important as they differ from lab to lab) then members will coment. You are legally entitled to your results under the Data Protection Act 1998 but you may be asked to pay a small amount for the printing.

Jazzw profile image
Jazzw

Also, ask them to test your B12 levels. And iron. I take it you had surgery to fix your neck? Some anaesthetic gases can deplete your B12 stores massively - and although it sounds minor, B12 deficiencies can be incredibly debilitating.

HLAB35 profile image
HLAB35

The stress of looking after your daughter must have been playing havoc with your adrenals and if your thyroid is struggling, then it's no wonder you keep falling asleep.

Please get those results.. and consider advice on Thyroid UK about supplements for underactive thyroid - B12, folate, vit D etc. If you can find out your t3 levels, all the better.

Interestingly, some of the things good for low thyroid can help other autoimmune problems like fibromyalgia and CFS.

Today there are some people joining the dots between many autoimmune disorders that effect our glands, our guts, our muscles and our brains and they have been very helpful to me. This is the start of your journey of discovery and I'm sure you'll improve with a bit of help.

Suekate profile image
Suekate in reply to HLAB35

I am taking melds for my thyroid. I also have fibermylogia. I am taking so many pills they put them in cards so I will not miss any. My doctor keeps cutting out medication every time I see her. Now to get an appointment I have to wait 6 weeks. I have new problems with my urine and am conserned about my kidneys. I will try to get my numbers from my doctors secretary

Do

Any surgery in the neck area, tonsillectomies included, can throw out the delicate balance of the thyroid gland. Pursue a proper diagnosis, if bloods come back normal range request a follow up test in 4 months. The gland can struggle and show ok readings then go off kilter. Keep on top of things and push for screening as mentioned above, we have to be pro active to get the treatment we desperately need unfortunately. Good luck.

Suekate profile image
Suekate in reply to

Thank you

HLAB35 profile image
HLAB35

drmyhill.co.uk/wiki/Fibromy...

Dr Myhill's website is a mine of information, so take it a bit at a time, especially if you're very tired.

Cutting down on the carbs is a main piece of advice really to stop you from crashing. However, you probably do need to snack as you very likely have weak stomach acid and large meals are hard to digest. When I was very tired and weak I started out by getting some digestive enzymes from Holland and Barrett, so I didn't need to sleep after every meal!

I recommend for snacking the combination of 70% dark chocolate and brazil nuts as they're full of Magnesium and Selenium (helps to make t3 from your Levo) and the fat content of the chocolate is higher that the sugar content; also, full fat yogurt with a bit of vanilla extract added for flavour and boosting serotonin (happy hormone) as it'll reduce sugar cravings; finally, green tea is good for waking you up and seems to last better than coffee.

I really hope some of this will help you :-)

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