Endo recommendations?

[Javableue]

Could someone recommend a good private endocrinologist in London for thyroid problems? Thanks so much!

[Tyna20]

Dr Lulsegged. Princess Royal Hospital. Orpington. Kent. 01689 86300. The Sloan Hospital. London and Chelsfield Park Hospital. Kent. Secretary, Catherine Rawlings. 07792 568036. I haven't used him myself but he was recommended on this site a while ago and I kept his details. Apparently you can also go through choose and book NHS but there is a long waiting list.

Let me know how you get on if you see him.

[TupennyRush]

I have Pm'd you with details on the endo that I see.

[Clutter]

Javableue,

Email [e-mail] for a list of member recommended endocrinologists.

[Bellmitzi in reply to Clutter]

Hi I have emailed this email address3 times yesterday but not sending do you know if any problems thanks

[Clutter in reply to Bellmitzi]

Bellmitzi,

Email address is correct. I'm not aware of any problems their end.

[moonieblue in reply to Clutter]

I also decided to go private to see an endocrinologist. Will email louise. Thank-you

[Clutter in reply to moonieblue]

Moonieblue,

Email address has changed. It is now [e-mail]

[Javableue]

Thank you so much for your replies everyone!

[Javableue]

I'm definitely going to follow up on your advice!

[puffyface]

I don't know how to PM, but if you send one to me I will reply as see great endo at the London Clinic.

[Hidden]

I was going to leave a recommendation also, but I notice Tuppeny Rush has already left you a message and I believe I will be recommending the same person. Tuppeny recommended him to me and I saw him in London last night (Thursday 1st September) when I came out of the consulting room with my husband I burst into tears. My husband knew exactly why, it was just such a relief to have someone listen properly to everything you say, (I sent some information in advance which he also said he liked - and had read it, which saved a little time) I didn't want to go in there with any pre-conceived ideas of wanting one particular medication but different avenues were discussed and he has given me two options to try, or could even put both together depending on how they each work. I did have a blood test while I was there, so it was a big bill, but I feel sure it will have been worth it. I actually felt a whole lot better today just for the relief of not hearing a doctor telling me its not thyroid, go to Slimming World (yes one did tell me that) its menopause (I was 60 when I heard that) or its age.

If you do get the list from Louise, I would research any you like the sound of independently to see what you can find out about them. I found quite adverse reviews about two of them.

[Javableue in reply to Hidden]

Thanks so much for your message Georgina61! I'm really glad that you are finally finding the response you need!

[Hidden in reply to Hidden]

My thanks go hugely to Tuppeny Rush for the recommendation. I'd almost booked other doctors a couple of times, one was 2 hours drive away, but if I thought it would have helped that wouldn't have mattered. But then someone else said that particular doctor had 'upset a few people'. So took Tuppeny's recommendation. Only booked the appointment last week. Very convenient being able to go evening time too so didn't have to take much time off work. I live in Bedfordshire, near Biggleswade, but Kings Cross is only 25 / 30 minutes, then a couple of tube stops. I was so relieved when I came out, we went to find something nice to eat before coming home. It feels like I've had an ongoing battle with nearly all the GPs in our practice when asking to be referred. On the last occasion 3 weeks ago, the senior partner finally said 'I think we will do a referral for you as this isn't going to go away is it' I laughed and said 'no, I'm going to keep asking'. But NHS referral was 3 months wait, so I asked to go private. They referred me to a local private doctor, but I couldn't get any information or reviews on her, so I just told the surgery I was going to the other one. I felt as I was paying it shouldn't be an issue.

Good luck with your search and hope you find what you need. I would just say keep an open mind re medication. Though I think if the doctor last night had told me to try increasing Levo, I would have been very disappointed, though I'd already told him I'd tried an increase twice in the past and on both occasions had untolerable side effects.

[Javableue in reply to Hidden]

Wow your GPs sound so obstructive. My thyroid is visibly enlarged so the problem isn't 'invisible' and they've given me an NHS referral without hassle but I don't want to wait that long. I don't have unusual test results though but haven't done the T3 test yet. I hope that your treatment will work out now and makes you feel better!

[Hidden in reply to Javableue]

My thyroid tests weren't unusual either, thats why they wouldn't refer me, the usual story 'your results are normal' but whats normal for one person isn't necessarily normal for another and in most forums those with experience seem to say to feel well TSH should be at the lower end of the range. But I kept saying I still had hypo symptoms. One Gp said to me two weeks ago 'yes we do find some people still have symptoms despite being medicated' so she admits that people still suffer, but they just leave us suffering.

[Javableue in reply to Hidden]

That's good to bear in mind. It's really difficult to read the results and know what the volumes and measures mean.

[Javableue]

Thanks to everyone for their recommendations. I've booked an appointment now with Dr Lulsugged as he works at a hospital near me but if that doesn't work out I will definitely investigate the Harley street dr. I'm very touched and grateful that so many people have replied, thank you all.