Benign MNG advice

[NealF]

Hi Everyone,

New to the Forum, but I think Forums are a great place to gain experience from others.

I discovered a lump on my Thyroid around May, popped up fairly quickly as I'm pretty sure it wasn't there before. I was suffering with a fair bit of stress and a rather nasty case of Sinusitis at the time. Went through my GP, had a US scan, and ended up within Nuclear Medicine to see a consultant who has carried out a Biopsy (1 sample), and two Iodine scans, one with just the picture and second with the CT/MRI scan.

Biopsy came back as Benign, and looking at the scans thyroid is working as normal, euthyroid I believe they call it. No hot or cold spots. It is multinodular, with one reaching about 2cm.

95% of the time I'm fine, but then I do get days where its sore, and my neck can ache a fair bit right up to my ear, but I think this is more muscle stiffness than anything else.

We have agreed to keep an eye on it, with another US scan in 6months.

However, I'm still a bit concerned by it all. I'm 38, and don't really want my Thyroid removed unless it has to be, but I also don't want it missed if its something more serious.

The consultant has been very good.

Is there any advice anyone can offer on living with a goitre? Or in the end, is it likely that I will have it removed....

No other Hypo or Hyper symptoms.

Thank you for reading.

Neal

[greygoose]

Have you not had your thyroid hormones tested? TSH, FT4, FT3? And the antibodies? If you have a goitre - and enlarged gland - there's something wrong, and the first thing should be to test the hormones and antibodies.

[NealF in reply to greygoose]

Yes, blood test was carried out for tsh, but not sure about others. Was told all was normal, and as I feel fine in myself, I've not felt there could be a problem with my levels.

I'm really just interested in how others with nodules get on?

Went swimming and it was sore for a couple of days, but now settled down again..... lump is still there.

[greygoose in reply to NealF]

Well, most people have some nodules. And most of them are benign. But I'm a bit confused as to whether you have an actual goitre or just nodules. Seemsa bit drastic removing the gland if the nnodules aren't bothering you. But if it's a goitre, that's a different thing all together.

I really think you ought to ask for a copy of your results to see exactly what was tested, and exactly what the results are. When a doctor says fine, it doesn't always mean fine!