Some of you might of read my previous post on Monday 18th. Basically I have been told in no certain terms by my current Endo that I will be taken off Liothyronine shortly. Anyway, I am and was very upset, by the Consultant that day and basically told by her that the money spent on the drug, could be spent elsewhere. So I was completely devastated as I have been on it for over ten years. Anyway, I was advised to report it to PALS at the hospital and tell them how I felt. I have had two phone calls from them today, very empathetic and agreed with me that the Consultant was very unprofessional in her conduct. They will be investigating it and at the very least (hopefully) the Consultant concerned will realise she needs to be more understanding and empathetic to individual's. I have asked to be transferred to a different Consultant too, as I do not want my treatment compromised. I am aware my name might be mentioned. I am not a confrontational person by an stretch of the imagination, but I will stick up for myself and loved ones, especially family members or even strangers who are venerable. So although the outcome, is likely to remain the same regarding the medication, at least I won't have any regrets in standing my ground regarding my current situation. We all deserve total respect regardless of our health and status. Hope this helps someone, who is not happy with their Consultation or treatment in future, meaning that there are people who will listen and help. Best wishes to everyone.
Update and If you are not happy...... - Thyroid UK
Update and If you are not happy......
It's not connected to thyroid but just to show how unprofessional medical,and nursing staff can be ( and I was a registered nurse once!) my dad spent two days in the HDU after having surgery for bowel cancer. When he was told that he had to pack his things up to move to the general ward, the staff nurse told him that they needed his bed for "more deserving cases" than him! I was so shocked that I was unable to speak. How much more deserving do you need to be???? Of course I understood that he would be moved out of HDU but really, there are better ways of talking to someone who is undergoing such a stressful time in their lives. Hope you get a better Endo. Clemmie
Clemmie, it would seem to me that most of the medical profession has 'lost' that most important word 'vocation' rather than job. People are particularly vulnerable if very unwell and to be treated so disrespectfully just like Dr Shipman did for his own ends and the tragedy of the care the elderly got at 'end of life' doesn't bear thinking about.
What has become of compassion and tenderness for the ailing.
The ironic thing in all of this, is that if it wasn't for people with health problems, they would not have a job lol. I find it so incredible that the "old school" of compassion and empathy has long gone especially with the younger generations that have followed. I am proud of the NHS mostly, because there are a lot of good people who work hard in the Service but unfortunately a few that give it a bad name. Take care 
It would appear that the Endocrinology need an update from Thyroiduk.org.uk as they refuse to change their guidelines.
I do know that many get on o.k. with levo but many DO NOT and they don't seem to understand/or don't want to.
Despite this Article by an Scientific Expert - and a three yearly reminder for a comment, they never ever responded.
We know for a fact that the Article is true.
If the Endocrinologists/doctors had a family member so unwell, like many of us remain on T4, no doubt they would be able to source either T3 or NDT and make them well again.
(Re NHS - my daughter for one, with her serious non-thyroidal condition, we have nothing but praise for the quality of her care and the brilliance of her doctors/specialists and all of them definitely get a load of gold stars).
You would think so, but they don't. She made out that there was no scientific evidence to show that T3 works that it was an unnecessary and an expensive drug, that could/would cause all sorts of health problems. Also that the money spent on the drug, would be better spent elsewhere. There are two hospitals that I have been told about including the one I am under, that do not support T3. She does not support it and will NOT prescribe it. I am under no illusion that a majority of Endos in my area are of the same feeling, even though it is a licensed drug. I just can't understand why there are not more pharmaceutical companies supplying it to the NHS, then it would be a lot cheaper, but there is only one to my knowledge.
It just shows how uneducated she is if she can do no thinking for herself and ignores patients, many who now know more than the doctors.
The Associations have told lies, non-scientific statements as well.
Maybe send her a copy of this Scienific statement re NDT. and also this one re T3: (of course their hands are tied if they are prohibited from prescribing it).
Clemmie, that is shocking and horrible - your poor father - as you say how much more deserving can you get and there are ways of moving someone without making them feel that they are keeping someone out of a bed. Same for people who are labelled 'bed blockers' - they aren't, it is successive governments who have been short sighted enough to have got rid of convalescent homes without stopping to think about why they existed in the first place.
I really don't know why people who have had a 'kindness bypass' choose to go into the 'caring professions'. Or if they started off ok and have become tired and jaded through time then they need to move on.
I used to teach and I always told myself that no matter how awful a child was he / she had parents who loved him / her dearly and if he / she didn't then it was all the more important that I treated them kindly when they were in school. The day you stop being kind to people you are supposed to be looking after should be the day you change job.
I totally agree!
OMG your poor dad! You must have been devastated. How on earth can someone say that to a person that is so poorly and obviously needed the bed in HDU, hence the reason he was there. I know these beds are precious, (I was in HDU for 2 weeks in 2014)These people honestly. I am in awe of the NHS generally as I have had to be because of my health and they did save my life 18 months ago. But to feel the way I did on Monday, I could have wept (well I did) - I know I was expecting it regarding the medication, but I am very venerable at the moment, I am a full time Carer for my sister, my dad is very poorly and we are still grieving for our Mum, who we lost in February after five long years with dementia. All I kept thinking was "I need my mum, what would she say right now" - I know she would have gone ballistic. At the end of the day, (hopefully) it will be a tap on the wrist and perhaps (just perhaps) the Consultant concerned will think twice about what she is saying, in future. At least I was able to confront the situation without regret. Thank you Clemmie, Take care Jayne
I am on T3 only now and in no-way will I ever let anyone take it from me. I am fortunate to have sourced my own and I found the UK T3 not so satisfactory and I and others on this forum complained about it a while back (and since then I believe MP have increased price four or five fold) and the fact that your doctor can also precribe the other T3's available on the NHS on a named-patient basis (details from Thyroiduk.org.uk) and they are reluctant to do so due to the guidelines.
I think it is disgraceful to withdraw a life-giving hormone that relieves all symptoms and makes the patient well but is not prescribed or allowed.
It's not as if we imagine that it makes us well and I doubt your Endo even knows it is the active hormone we require in order for us to function.
hormonerestoration.com/Thyr...
You are right to complain.
To add to my other reply - Just read the above link and all that T3 does regarding Liothyronine, regarding the different conditions etc, is that the drug causes heart problems etc. I could not believe my ears. This article has confirmed that all she was saying was lies. I have been on it for ten years or more and have had several heart scans etc and each time everything is fine and I think it is because I am taking it. I also have low cholesterol. She also said that my cholesterol levels, anaemia and B12 conditions were not because of the thyroid problem, just side issues!
How is it that I was in and out of the A&E innumerable times sometimes by ambulance. Awake all night with palps, cardiology, ECG's and 'all clear'. As soon as I switched to NDT - (now T3) I've never been in a hospital since, nor ambulance, nor have had palpitations! My body is complete calm.
Even when I had some T3 added to T4 and went to the Endo Department for my check-up, the Endo Nurse's look of absolute astonishment at the difference in me was astounding . Of course by then I knew I had to get off T4 altogether so asked to be discharged and then followed my own path. I don't like to think back to the nightmare me and my family went through. Thanks to Dr Skinner, Dr Peatfield and Dr Lowe's articles and, of course, Thyroiduk.org.uk.
Well done for doing that. It is shocking that you had to. Hopefully your next consultant will have a better bedside manner. What a cheek to say something like that to you let alone take away the drug that had been keeping you going for so long.
As you say everyone deserves respect no matter who they are or what they look like and sadly that doesn't always happen.
Hi Jollydolly, I begin to wonder who PALS are working for, the medical staff or us. I made a complaint about a Consultant Pharmacist not so long ago and PALS phoned back to try and talk me out of this complaint. When I did not back down they said did I wish to still have this complaint outstanding. I most certainly did. However, I have heard nothing since. I also complained 6 years ago and this complaint has still not been resolved. My son and I are now suffering badly from this problem.
j_bee, I am so sorry to hear this. I was surprised by this morning but both of the chaps I spoke to, seemed very genuine and concerned. So I have to believe that it will go further. If it doesn't, then at least I won't have any regrets and if need be, I will ask to be referred to a different Endo, maybe at a different hospital. I was asked to contact them, via a Manager who works for the NHS as she says they are (to quote her) a pain in the arse, for managers and staff but good advocates for patients. I wonder why, you never heard anymore? That is really naughty and disrespectful of them. Would you not want to call them to see if there has been any progress, would that be an option?
Best wishes
When I can find the strength I think I must look into it further, but we have a few appointments to get through at the moment, and if none are satisfactory then I have to take this somewhere further. Thanks for the suggestion Jollydolly.
You take care and I hope that you feel a little better soon. I know it is hard to describe how you feel. Sometimes, I feel like a unwinding toy and that I am carrying leaded weights. Best wishes for your forthcoming appointments j_bee
Ellismay, Thank you so much, I will read these articles shortly. I am overwhelmed by all the support and help that I am receiving. It means so much.
Being very cynical, I think if they sort the thyroid out then there might not be too many more illnesses to worry about. We can't kill their fatted calf, can we?
If you have been on T3 for ten years and it was deemed necessary for your health then Ministers have said it should not be denied on cost grounds alone.Get them to confirm in writing ,if you can, the reason for the denial of T3 and complain to your MP .
Thank you Treepie, good idea! I think I will, I have nothing to lose really except the medication of course!
Hear hear!
I've been self medicating for about 6 months, and one of the great benefits of it is that you don't have to deal with consultants whims, or fear your medicine being taken off you.
I agree, I am starting to think that SilverAvocado! They won't win these "Professionals", they know naff all lol - My feeling is my body, my choice
Do you have unexplained symptoms/nodule but thyroid readings OK, if so please read this
Still unwell and not sure if results are ok. Help again please.
I was ready to battle . . . 
health records and what you may find in them.
Email to Dr Anthony Toft
