Hi, My name is Jayne. I was born with Congenital Hypothyroidism but my parents did not find out until I was five weeks old. I was lucky. Everything was fine until I was in my 30's My dose then was 200 mg. I led a relatively normal life, was able to gain and lose weight without problem and had two full term pregnancies, although I did have problems in the second one. Once I reached 32, I was under a new GP who decided that she knew best, she reduced my dose to 75 mg! So you can imagine how that affected me. Kept going on about how a doctor in London had prescribed thyroxine as a slimming agent and had been struck off. How it could enlarge my heart etc. What she failed to understand is that I wanted quality of life and not quantity. Since then I have had a lot of health problems. I initially developed odema in my left foot which spread to my other foot (I have to wear specialist shoes now) Other problems include miscarriage (5 times), gyne problems, I am at my heaviest ever and I also have B12 deficiency and pernicious anaemia. Two years ago I ended up in hospital with pneumonia and I found out that I also have sleep apnoea although that is getting better. They reduced my medication in hospital again and it sent me over into diabetic mode. Although I have a normal reading at the moment. I am due to see a Endocrinologist today, as my current GP is no longer is so say not "licensed" to prescribe me one of my thyroid tablets, which is Lithyronine. I know it is considered expensive, but I have been on it for over ten years and was prescribed it by another Specialist. I am now on 250 mg of thyroxine and 20 mg of the Lithyronine. I did challenge the GP and of course she denied the money side. But after reading other posts here, it has doubly confirmed by suspicions. I have also been told in the past that "I am lucky" to be given this medication. I do feel that if the original GP had listened to me, then I might not have had the problems I have now. So understandably I am really concerned about the outcome of todays appointment.
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