Advice please - partial thyroidectomy - Thyroid UK

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Advice please - partial thyroidectomy

Kate111 profile image
6 Replies

I am looking for some advice please, I am scheduled to have a partial thyroidectomy to remove half of my thyroid and would love to hear some experiences (positive or negative) from those who have already been through this...

A brief bit of history - I have a son who will be 3 in September. A year ago we decided to try for a second child but I didn't seem to ovulating. Around the same time I noticed a lump in my throat.

A years' worth of tests have revealed that I have a toxic nodule on my thyroid which is producing excess thyroxine. I have decided not to take carbimozole as I actually don't feel too bad (just shaky sometimes, a bit of insomnia etc.) I have been advised to have half of my thyroid removed as this seems to be my best chance of a cure, but I'd love to hear some of your experiences if anyone has had this surgery.

Thanks :-)

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Kate111 profile image
Kate111
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Heloise profile image
Heloise

This is one woman's experience with nodules. stopthethyroidmadness.com/2...

GAG68 profile image
GAG68

Hi

I had a sub total thyroidectomy 32 years ago as a teenager for Graves' disease as a child . Carbimazole worked initially but as time went on , wasn't as effective . Obviously things change over time however surgery was no issue. Any surgery will make you feel a bit weak post op and you will need some recuperation . I received a blood transfusion as it is vascular so may bleed. My worst memory initially post op was having to sleep upright but this may have changed. Overall I wouldn't worry too much.

Kate111 profile image
Kate111 in reply toGAG68

Thanks for the reply. Out of interest, do you mind me asking whether you had to take thyroxine after the op? They say that there is only a 30% chance of becoming hypothyroid but from those I have spoken to and what I have read online it seems to be higher than that..

bantam12 profile image
bantam12 in reply toKate111

I had a partial in my teens ( now 61) I didn't need thyroxine afterwards but in my 40s Graves returned so I had RAI.

Kate111 profile image
Kate111 in reply tobantam12

Ok, thanks very much for the info :-)

GAG68 profile image
GAG68 in reply toKate111

Hi yes I automatically went on thyroxine afterwards. Dose increased over time as remainder of thyroid appeared to burn itself out. Hasn't been an issue. Very stable on medication . The op was the best option and scar not a problem. Was much better than the swollen goitre

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