I'm glad you've found something that helps. I use NAC myself, but for other reasons - it thins mucus in the lungs which makes it easier to cough up, and so I use the NAC if I get a cold or a respiratory problem of some kind.
I'm very interested in knowing where you found a textbook from 1917 which helped you on the subject of mucin and myxedema. What was it called, who wrote it, and where did you find it?
Scroll down until you come to "Symptoms: A Medical Text Book" and read from there. It's from 1990 - a bit more recent than your 1917 book, but still relevant. It astonishes me that almost all the information in it has been forgotten in just 25 years.
"Hyaluronic acid is the major glycosaminoglycan that accumulates in myxedema. Its hygroscopic nature allows it to swell to one thousand times its dry weight when hydrated. Mucin deposition involves not only the skin but also the tongue, myocardium, kidney and most other organs of the body. Increased transcapillary escape of albumin, resulting in extravascular accumulation, may also contribute to the edema. In addition, inadequate lymphatic drainage may further explain the formation of exudates that are apparent in the myxedematous state
I had Graves' myxedema on my face, neck and ears, sometimes called Graves' dermopathy or wrongly pretibial mxyedema, it can appear anywhere on the body not just the shins! The rash part has gone after 17 miserable years, thick and lumpy and painful but the swelling is just like the fat build up you get behind your eyes in Graves' disease so I am left with a different face to the one I had for the first 47 years of my life.
Doctors I agree no nothing about myxedema. I was at first told I had acne by a consultant! My skin was desperately dry, no pustules…madness! They had no clue so they come up with acne!
My skin was so dry and thick that when I went to the dentist for treatment, when I opened my mouth the skin at the sides would crack and bleed, it was a nightmare. The Graves' foundation in the US told me it would go one day but they could not tell me when. Three years ago it went almost overnight, incredible!
It was like having a thick, painful, disfiguring mask on my face for years, now I am left with the swelling.
I've seen doses of 2400mg per day being mentioned, but not for myxedema. (I can't remember what it was for to be honest). I've never taken more than 1200mg per day personally.
I have never considered two a day to be a high dose. And I wasn't taking it for myxedema, I was taking it for respiratory problems. Flubbery hasn't mentioned what dose she was taking. I only take NAC when necessary, rather than all the time. If I don't have congested lungs I don't take the stuff.
i was trying to save money and use less pills, by getting a higher dose pill. i read somewhere that izabella wentz mentions it in her root cause book..i think 900mgs 2x daily. Maybe it detoxes or kick starts healing..not sure. The idea is to get rid of the hashi's by healing l the immune system/gut.
Flubbery, would you mind sharing the information how much of NAC you take daily and how long it took the first signs of improvement in mucin to show? Thank you.
How has it worked with the liposomal glutathione Flubbery? I tried the NAC, but it is very vasodilating, so I can't take it daily. Was thinking of going to the source too.
Flubbery, how long did you take NAC before you saw improvement? I have been on for about a week (600 mg 3 times per day). I actually think it looks worse. Did you experience a worse before better period?
Wasn't over night, definitely had a weird period for 2-3 weeks where things looked swiss cheese like. Not pretty. By 5 weeks, everything was much better.
I have been using NAC and I do believe it is helping. I am not 100% back to normal but I do see some improvement. Now, with that being said, I had a biopsy done on the "goo" as I call it under my skin to see if it was actually mucin deposition. It was not. The lab came back "mild scattered perivascular lymphocytic inflammation". The dermatologist said that basically it was normal tissue but definitely NOT an abundance of mucin as they did the stain test on that. So I'm not sure if the NAC is just helping with lymph flow or what but I do see an improvement in my situation.
I'm trying NAC too... I know I have myexedema in my upper arms, and I'm convinced I have it in my belly too, I have a hard six-months-pregnant belly going on. Hope it works :\
Same here. Interfering with my breathing now..idk what to do or who to see about it. I’m really feeling at my last wits. It’s agony. Agony. I hope you’re doing better...
Please check with your personal Doctor first, but I am really singing the praises of "Autophagy" also. This is when your body scavenges old and bad junk in your body and cleans it all out. I find that intermittent fasting from 16-18 hours a day works great. I don't have any solid science for clearing out myexedema waste, but it must have same type of effect.
Any updates? I think I went through the same thing as you asking with being on keto. I am still on keto but backed off carrots things I did at first that now I realize we're very thyroid supportive and 3 years later my weight and myxedemma are back. So... Starting with the intention to lose what I didn't even think was losable, but I lost first years back and made a drastic change-myxedema.
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