Thyroid UK
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Levoxyl (Eutirox), anyone able to clear up their Myxedema on this?

I've been on Levoxyl for 3 weeks. Started off on 25mcg the 1st week. Been on 50mcg for past 2 weeks.

I'm hoping this will clear up my severe Myxedema (general edema).

Anyone else have any luck returning to normal size on this med?

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Thanks for being honest. I suspect that I will need a combination of T4 and T3 or just T3.

I'm self medicating and having a hard time finding T3. There is one place that sells it but I hear it's weak.

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I inboxed u!

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Yes I did! Thanks much!!!

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The normal dose of levo is 50mcg for 6 weeks then a blood test and increase of 25mcg until your symptoms are resolved..

When you go for your blood tests get the earliest appointment and fast (you can drink water) and leave about 24 hours between your last dose and the test. This helps keep the TSH at its highest level as it drops throughout the day and doctors are apt to only take notice of the TSH and not the T4 and T3. It might prevent them adjusting your dose as well by to trying to keep it 'within the range'. That is all wrong. It should be till we are rid of all clinical symtpoms.

We have to read and learn if we want to recover our health. If doctor hasn't tested Vitamin B12, vit D, iron, ferritin and folate ask for these too as we are usually deficient.

As long as the TSH is somewhere in the range they might stop increasing and you may not yet be relieved of have symptoms. Most of us feel better when the TSH is around 1 or lower but doctors think anywhere in the range is fine (wrong).

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Thank You!!!

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Yosay

try NDT instead its cheap and natural and heals tissues damaged by hypothyroid

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Thanks! I inboxed you!

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So hypothyroid damages tissues? Is that why it's so difficult to get rid of the swelling?

Sidenote- 3 years ago I had Graves disease and the methimazole I took crashed my metabolism.

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So what did work for you if anything?

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Understood. Thanks for the info.

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Any thyroid treatment that makes a person better is, by definition, "superior" to any medication that doesn't make that person better. And different people get better on different treatments. If I got better on NDT from Thailand (as many people do) or T3 from Turkey (as many people do), then those treatments are superior for me. The fact that others have got better on something else is irrelevant.

Nicolas_cr, I know you've said that you bought some NDT from Thailand that didn't work and went bad. We can all be conned by fake medication if we use the wrong source, and any medication can go bad if it is incorrectly stored before or after purchase. But your crusade to stop people trying things that didn't work for you is unfair on everyone. You could be denying someone the cheap medication that turns their lives around. So please stop telling everyone that medication XYZ is rubbish and that people who say XYZ helped them are deluded liars.

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I didn't notice that your reply was 10 days old. This thread has been replied to multiple times today, so it is still current as far as I'm concerned.

If you bought Thai NDTs from a "well-known website", that could mean anything, so I won't answer that. I've read about people complaining about Armour Thyroid not working properly, ditto with Erfa, and they are both well-respected brands. But people still buy them and nobody tries to dissuade them from doing so, because they still work for many. But you seem to have a particular bee in your bonnet about the Thai NDTs and seem to want to put people off them. I don't think this is fair. It could work brilliantly for many people at a fraction of the cost of the bigger brands. Why put people off them because of your unfortunate experience, which is obviously not universal?

STTM is claiming that NDT is superior than any other thyroid drug, if you think like them then what are you doing on this forum?

This forum, as far as I can see, is neither for nor against levo, T3, T4+T3, NDT of any kind, or any other combo people can think of. I think this forum is in favour of what gets people better. I don't know why you think this forum is anti-NDT?

But I am not saying that everybody should take the same as me, I am just trying to explain to you that statement that NDT "heals tissues" in the literal meaning of that statement is not true and that NDT is not in any way "superior" than other synthetic thyroid meds.

You wrote the above in response to this comment from reallyfedup123 :

try NDT instead its cheap and natural and heals tissues damaged by hypothyroid

If you think what reallyfedup123 wrote was not true then you appear to be saying it is a lie.

I would also say again - the treatment that is superior for one person is useless for another. So there are no treatments that are superior for everyone.

And I can assure you I don't read everything you write. Reading posts which are so often negative is depressing.

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You obviously have a lot of time if you are copying and posting again what I said around.

I've learned how to copy and paste.

Of course that I said that statement that NDT is "healing tissues" is wrong. None of thyroid medication does that, simply as things doesn't work that way.

So, when people stop having headaches, heart pain, joint and muscle pain, carpal tunnel problems, plantar fasciitis, breathing problems, or a hundred other symptoms, after taking thyroid meds, then this is nothing to do with the thyroid meds and no healing is going on? What is responsible for the improvement in symptoms then if healing is not going on? And what are the thyroid meds doing? Are you suggesting that it is acting as a placebo?

And after someone saying thing like that, person that doesn't know how body functions could think that it is a miracle drug.

For some people thyroid meds are a miracle, it just might be a rather slow one. Overnight miracles are rare, but miracles that take a year or two can and do happen.

About website, I bought Thai NDT from, lets just say that if you ever had NDT from there you probably also bought from them so IT WAS ORIGINAL.

Since we can't name names due to forum rules this particular discussion gets us nowhere.

Also I was talking about STTM, when I said that according to them NDT rises dead from the grave, I was not saying anything about this forum.

You are the only one who has mentioned STTM. I haven't mentioned them at all until now. You clearly don't like STTM. But lots of people do. So if people want to try NDT on the basis of information written on STTM then that is up to them, and I can't see why you are so keen to stop them.

And about my "intentions", I mean why I am saying all that about Thai NDTs around, it's because I personally strongly feel about this topic AS I WAS TAKING THEM. No other reason.

I realise you feel strongly about this subject. But you can't seem to accept that anyone else has had a different experience to you. I know someone who has been taking Thiroyd for about 8 years. Someone else has been taking Thyroid-S for about 15 years. Anyone who does well on Thai NDTs isn't saying this just to annoy you or wind you up. It is true for them. But you seem determined that nobody else must try them because it didn't work for you. This isn't fair on people coming along later who might miss out on a good deal, and might end up stuck on a treatment that doesn't work for them e.g. NHS levo, or might end up with no treatment at all because they can't afford the more expensive brands.

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Have you seen this list at all?

hypothyroidmom.com/300-hypo...

I can't understand why you think not one single one of those symptoms in that list involves any form of tissue damage. I think quite a few of them do (although I would accept that not all of them do). And taking the correct type and dose of thyroid meds helps to clear the tissue damage in some cases, relieving people of their symptoms.

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Myxedema is the proper name for hypothyroidism and the latter stage of undiagnosed hypothyoidism would be Myxedma Coma. Doctors used to diagnose us by our 'look' and clinical symptoms before the blood tests replaced medical skills.

tuberose.com/HypothyroidSym...

"I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions"

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Ok. Thanks for the link.

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Yosaf, run to an endocronologist. Wrong dosages can screw you up for years. PS -My sister switched to Nature-throid which has t1,t2 as well as t3 and t4. Available by prescription in NY/NJ/ USA. NO MORE myxedema. Took 7 months. Synthroid has only t3 (cytomel) and t4. Hope this helps! Happy Chanukkah. Margo

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Whatever you do get a prescription in the USA for medication. So much studies say that internet products are not tested and you are playing with your life. Armour (NDT) has side effects for many. Naturethroid is only one 100% pure and never recalled and scruplously looked at by FDA. Its a GAME CHANGER

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What's the difference between mydema and weight gain?

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Myxedema is the build up of fluid and toxins in the connective tissues due to an imbalance in the function of the thyroid. Only adequate treatment of the thyroid can clear it up.

Weight gain, is excess FAT storage in the body due to a high calorie intake.

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Thank you for that! I've googled it too but it's hard to know if I'm fat or its myxedema. That test of pinching the skin I can't pinch mine! So how would we improve it? I'm on 3 grains and bloods are looking good so it's tricky to say.

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When u have done everything known to man i.e. diet restrictions, gluten free, veganism, the gym, etc and nothing works. That's when u know its myxedema . I start blowing up 2 yrs ago when I started methimazole for Grave's disease. It crashed my metabolism.

I'm still trying to figure out how to get back to normal. Ppl here told me about T3. So I will order some soon. If that doesnt work I will try nature thyroid someone just mentioned on this thread.

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I'm already on NDT and had t4+t3 before. Maybe it's because I went untreated for so long it will take longer to recover? Never noticed about myxedema. And yes I've been vegan since I was 13 became a pescatarian 4 years ago. Gluten sugar alcohol coffee free for about three months and have lost nothing. Went to endo with print outs of my gym attendance and my fit bit records (I walk about 80k a week) and he told me I must be eating more than I need. I left the office fuming. He also told me the only thing that would help me sleep less would be recreational drugs!!!

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My endo told me the same. That is why I am now doing this solo. They are useless and very ignorant about the thyroid, an organ they are suppose to be experts on. Ha!!

When they can't help you or give you a logical explanation, they throw the onus back onto the patient even though what they say doesn't make sense.

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Ecxactly!!! How much less he expects me to eat? Plus with that level of physical activity proven by activity track! I'm self medicating too. I've read shaws link on myxedema but it's not very clear how to improve it.

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This myxedema is VERY VERY tricky. So, I am experimenting with different things to see if I can help myself. I've found Healthunlocked to be a much better resource than any doctor.

I will keep researching. But this really is a nightmare

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Me too! If it wasn't for this site I'd be bed ridden. But still have a long way to go

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