Cold limbs.: Hi i have always suffered from both... - Thyroid UK

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Cold limbs.

fairyeyes profile image
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Hi i have always suffered from both feet being cold and one hand,never been a problem as it was bearable,however i am finding i am so so very cold with these more then ever before,just cant get them warm and its really not nice,one foot is so cold it no longer at the moment reacts when its touched with something sharp etc,my levels are good and this  has only just started,been on levo for under a year,any advice or help would be great as i dont want to waste my gps time on this.x

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fairyeyes
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shaws profile image
shawsAdministrator

If any of us develop clinical symptoms while on a dose of thyroid hormones, then you must make an appointment for a new test.

 Cold is a clinical symptom if due to being underdosed/undiagnosed. I would recommend a new blood test and have the earliest possible and don't eat before it. Also allow approx 24 hours between your dose of levo and the test and take it afterwards.

Ask if he will test your Free T4 and Free T3, probably not but ask anyway.

If you've not had B12, Vit D, iron, ferritin and folate ask for these as well as we are usually deficient.

fairyeyes profile image
fairyeyes in reply toshaws

Thank you i am due another test ,so will book it asap.

Jazzw profile image
Jazzw in reply tofairyeyes

Hope you don't mind - I've read a few of your older posts, so see you're on 75mcg of levo and have had iron infusions in the past - plus know you've suffered folic acid deficiency in the past - so very sorry to read about the loss of your baby with spina bifida but happy that you were one of the folic acid pioneers and went on to have healthy babies.

I think there's a really strong possibility you're Vit B12 deficient. Do you take any B vitamins now? If you don't - then don't start before asking to have B12 tested as it'll skew the results. 

I also found out recently that there seems to be a link between spina bifida and Coeliac Disease. Have you ever been tested?

fairyeyes profile image
fairyeyes in reply toJazzw

I had all my vits tested last blood test and all was good,i am going to start taking vit b12,i have been tested for a few bowel things as i do have trouble in that area for many years,i actually went to the hosp yesterday for an upper abdominal ultrasound as for the last few months  i had suffered with very very bad pains under both ribs,both day and night,we think it may be endometrosis as i have it on the bowel,but i could find no pattern as i can with my other endo pains.So i am waiting for the results.Thank you for replying to my post i really do appreciate all replys,Will let you all know how things go.Our bodies are very complicated sometimes x

nettiboo1982 profile image
nettiboo1982 in reply tofairyeyes

hi I suffer cold feet and hands also and struggle too get warm its a nightmare I just put it down too be hypo. Sorry not much help but your not alone x

Jazzw profile image
Jazzw in reply tofairyeyes

When you say "all was good" - well, we see that a lot here. And often it isn't...

What were your results? In range isn't usually enough.

fairyeyes profile image
fairyeyes in reply toJazzw

I cant remember the figures but i will get them and post on here asap,

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