Clutter or flower

[Andypandy30]

Hi I'm not great feel very confused and can't think straight can't get bloods done until nest week crying alot remember I had palpitations I only took 50 mg should I u to the 75 im so mixed up 

[shaws Administrator]

Andypandy30

It's a horrible time for most when first on thyroid hormones. We can have lots of strange things happening and because we're not well in the first place we just don't know what's going on and are surprised that when on meds we can feel worse inititally.

I don't know when you were diagnosed but when first on levo it takes around 6 weeks to build up in your system and then 25mcg increases until you feel better.

Don't panic and when Clutter is on she'll respond.

It has taken years for our bodies to gradually reduce the hormones and it will take a while for them to build up again. 

[Andypandy30 in reply to shaws]

Thank u shAws I just don't feel right . Trying not to panic . Hoping it's the illness and not me . Feel like I'm in a haze and not functioning well . I'm tired depressed anxious about the way I feel I so want to be well . I don't think I shoukd have reduced the thyroxine I was just so scared of the palpitations .but think now it might have been low iron levels .the palpitations have eased I know I shouldn't have messed about with my meds . But I diddnt want to feel hyper as I don't like the anxious feelings that come with that . I just think by upping it I might lift this foginess and depression x

[shaws Administrator in reply to Andypandy30]

Most of us have gone through similar experiences and it's not pleasant at all and as most of the people we know haven't a clue of how it is to be low in thyroid hormones and go about their business (as we used to do).

When we're unwell we can have all sorts of emotions which are difficult to control but when you tell yourself you will be o.k. when you reach an optimum and I do know it's a long time to build up, it helps.

It is a slow process and in the meantime we can get other symptoms which are strange to us and we wonder what's going on. 

What has your doctor said about your palpitations? If given beta-blockers and because they can affect the uptake they should be taken well away from levo or any other thyroid hormones.

Your GP should have your heart checked anyway just to exclude anything untoward and will help you to relax.

Anxiety and 'depression' are symptoms until we get to an optimum level when there's sufficient T4 to convert to T3.

stopthethyroidmadness.com/t...

[Andypandy30]

I was put on propanolol is that tge link I diddbt know they had to be separated .what way do people feel when they're underactive and how different are symptoms to overactive I really want to get a control of this and know im not losing my mind scared shAws x

[shaws Administrator in reply to Andypandy30]

No, you are not losing your mind. It is scary as our brain doesn't seem so sharp and it is common for members to call it 'brain fog'. Especially if they've always worked at a particular job now it might be difficult to do this automatically because previously they didn't think about it. Once you gradually increase meds you will also begin to feel better and back to normal when on an optimum dose. You've had lots of good responses.

Some people think they are getting dementia because of their difficulties.

[Andypandy30 in reply to shaws]

Thank you shaws I really appreciate your help I am hoping with everyone's help I will get some sort of control of this . It is scary and so much to think about but u have given me reassurance that I can feel better in some way again xx

[Clutter]

Andypandy30,

The palpitations are probably due to low thyroid and low ferritin.  I think it was a mistake to reduce dose to 50mcg and you should resume 75mcg. 

Take Levothyroxine after your blood test which should be an early morning fasting test (water only).

_______________________________________________________________________________

I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

[Andypandy30]

Thank u clutter i do think that's why my mood is so low the crying is getting to me . I will increase and continue with iron until blood test x

[shaws Administrator in reply to Andypandy30]

Andypandy, if you respond to an answer to someone in particular, you have to press the green reply button, otherwise they're not notified and you may wonder why you've not had a response.

[Andypandy30 in reply to shaws]

Thank you shAws I diddnt realise xx

[sparkleface]

I also felt exactly like you do-confused,can't feel happy or excited about anything and generally feel like everyone else is normal and I'm very abnormal. I have upped dose from 150 to 175-tsh was 3.3  last week T4- 16. Still can't decide whether perimenopause symptoms are being thrown into mix to make me feel this way. work is very difficult most days (I am a teacher) because of foggy and confused head.

[Andypandy30 in reply to sparkleface]

Oh thank u yes I feel like this . Up and down . No support from doctors and as I had palpitations last week . I started iron as they said my iron levels were satisfactory . And reduced my dosage from 75 to 50 so that could be why I feel like this . I always think a physical cause leads to the emotional cause . Iv increased back tday as clutter advised and think the palpitations were from iron deficiency . I won't get bloods done til next week x

[Hidden in reply to Andypandy30]

Bless you Andypandy30, I know what it's like to be fog brained and thoughts all over the place. I have felt better in that department since getting my B12 levels up. Have you had your B12 tested? You'll get there.  I have had to take the Propranolol again in the last few weeks, I am back down to 1 x 10mcg in the morning. I take my Thyroxine at 10 pm. Can you change doctors? 

[Andypandy30 in reply to Hidden]

Hi mango thks for saying that im feeling really overwhelmed with it all Im going to try to change docs tho it will take a few weeks I need to get b12 checked also im determined to get to the bottom of it all as Iv no quality of life at min x

[Hidden in reply to Andypandy30]

I can relate honestly... I felt just like you do , I found this forum last September and it really has helped me. I was ill for many years and still am, but getting the mind sorted out as helped to motivate me into the boxing ring of Gp's etc. It's hard I know but if you can think to yourself ' I feel like this now but soon I will feel better than this', When I get a  really bad day health wise I make myself think this and it keeps me from sinking. I had low B12 and the GP never told me, getting my results in print from the receptionist and putting them on this forum informed me I needed to supplement a few things B12 being one. I take Vit D3 and vitamin K2, B complex, Vit C, Omega 3, Selenium  and Pre biotics+pro biotics for my gut issues (another neglected area but I am gaining control of it).  I've gone gluten free and cut out lots of foods that are bad for the Thyroid and I don't drink water that contains Fluoride. It was daunting at first and seemed to overwhelm me but one little step at a time...I can see the Light at the end of the tunnel at last, I am sure that you will also. x

[Andypandy30 in reply to Hidden]

Thank you for your kindness .i am 100% sure my emotional upset is due to my thyroid .and ? Other deficiencies . I have contemplated a naturopath or sending bloods off if need be . I am going to ask for a print out of all my bloods done recently and will post them any advice will be welcomed . I am trying to be strong I really am it's just so hard when I don't feel in control of my body or emotions anymore xx

[Hidden in reply to Andypandy30]

Andypandy30, You are stronger than you think. You have the support and understanding of all those on this forum. I know it's hard but I'm confident for you, I look forward to hearing from you on how much better you are feeling. I felt like giving up because I didn't understand what was happening to me. It all seemed so impossible, I was not medicated for many years (after RAi x " treatments)and then under medicated and am still sorting that one out. I have cried to the GP and used to worry about troubling them and even worrying that they thought I was imagining all my illnesses. I don't actually care anymore if they are thinking this or not! What I care about is getting help and getting better. This is proof that I'm on the mend because I felt the opposite right up until September last year.  You go girl you can and will get through this, you can borrow my boxing gloves if you like.xxx

[Andypandy30 in reply to Hidden]

Aw thank you for the support and encouragement . Last time I went I cried to them to help me and they just want to keep increasingantidepressants . It's so hard to get through to them . I'm not imaginingmy symptom.I know im not right and will do anything to get some balance xx

[Andypandy30 in reply to Hidden]

Mango may I ask if your gp did these tests and what water do you drink as I do drink a lot and don't think about fluoride x

[Hidden in reply to Andypandy30]

I am in the UK and my GP does the Vitamin D and B12 test. + thyroid test.. I insist that they do T4, T3 , Free T4 and free T3 and not just TSH (which is what they did for several years telling me I'm 'in range') they have got fed up of my insistence now and just do it. Also I have recently been given appointments to see  an Endo, again at my insisting. I drink bottled water from Tesco called Ashbeck. I know this doesn't contain Fluoride but some bottled water does. I buy the 2 litre bottles in a six pack £2.10.  First check online that Fluoride is in your areas water supply. Some areas are lucky and don't have it. I'm in the West Midlands and it's there.

I drink lots of water and have done for years, again recent research showed that Fluoride is not good for your thyroid gland and that means everyone's not just sufferers.  Strangely on the TV news today it is talking about children's rotting teeth through drinking sugar drinks... Fluoride was put in the supply to counteract this??? x

[Andypandy30 in reply to Hidden]

Thank you for all the information I am in the uk I an going to ask for these tests today although I know they  will disagree .i will research the water . Did you also go gluten free x

[Hidden in reply to Andypandy30]

I have sent you a private message. x Hope it helps x

[Andypandy30]

Have you had a hormone profile done to see if perimenopausal . I'm experiencing prolonged and heavy periods .everything seems so out of sync in my body x

[sparkleface]

yes several times and am now seeing consultant at menopause clinic. she gave me hrt patches and progesterone capsules . felt very weird on oestrogen patches. Lots of palpitations and exacerbated fogginess! ! don't know whether to try again or not but was worried it would interfere with thyroid levels.

[Andypandy30]

I'm not sure wat are Ur menopausal symptoms ? I'm going to ask gp next week . It's awful having these 2 things going on at once x

[sparkleface]

not really so many physical symptoms  but more mental ones eg confusion, completely spaced out,fatigue, very low mood,feel quite a lot of derealisation feeling like I'm in a bubble-  very thyroid like! so much fun

[Andypandy30]

That's exactly how I described it like being in s bubble not really there . ShAws posted a link for me called stoptgethyroidmadness check it out im especially interested in the cortisol link and wonder do docs in uk do this Id like to eliminate a few things x

[sparkleface]

yes I read about cortisol but every time I go back to docs it's a real struggle to get anything  tested and I've been hypothyroid since I was 8. my consultant at that time did say that times of struggle with my thyroid would be in pregnancy and menopause . But at the moment I feel like i would welcome more physical symptoms if I didn't have the mental ones. It's  like not feeling comfortable in your own skin. You are inside your body somewhere and fighting to get out. Do you take t3 at all?

[AlliBalli in reply to sparkleface]

Hi sparkleface, after reading this thread most of what you describe really resonates with me. I don't want to hijack someone else's post but wondering whether I could pick your brain? I'm trying to get a diagnosis but doctors won't test beyond TSH!

Thanks, Allison 

[sparkleface in reply to AlliBalli]

That's ok! I did go and see a private endocrinologist which is the only way you will get a full thyroid function test unless you have a proactive doctor but he seemed happy with my results and suggested hrt.  All I asked my gp was if I could safely go up from 150 to 175 of levothyroxine which she said was OK.  Am still  at a trial and error stage although I do take busy b vitamins from Holland and barratt and magnesium and vit d to see if it helps as I am vegetarian also but these vits do help with both thyroid and perimenopause.  Am debating whether to try HRT again or not or just keep with vits.  It is a real struggle as I want to feel happy and have no real reason not to. I don't feel or look clinically depressed and have been offered countless anti d's all of which sent me off the planet and increased my anxiety tenfold. I just feel as if someone is controlling my body and mind! 

[meggie1 in reply to sparkleface]

I felt awful on HRT weight increase in my 50s and the start of underactive thyroid was told do not know if true that hrt deprives or rides on the back of throid hormones, Cabbot find a suitable tablet that doesnt give me migraine with

synthetic levothyroxine AT ONE TIME believe it was levolyx or something I could take that one

has this been discontinued anyone know and why

[Andypandy30]

Everything youv just said is me ! And no I want to ask aboit t3 Id do anything .i diddnt know this would be hard in menopause  ! I really am struggling x