After thyroid sugary : Hi I doing good just... - Thyroid UK

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After thyroid sugary

Karengann profile image
17 Replies

Hi I doing good just alittle sore.

And my test came back on the thyroid they taken out was cancerous

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Karengann profile image
Karengann
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17 Replies
brfran profile image
brfran

Good that its gone then. Get well soon!

Onwards and upwards now. Get well soon. 💐

Thyroidmeg profile image
Thyroidmeg

That's good you got it out I got mine out but mine was benign. You must have got a shock to hear the cancer word but as I understand it the cancer has gone with your thyroid so hopefully you're on the road to recovery

shaws profile image
shawsAdministrator

It would have been a worry for you before your op. Now you are clear.

I hope you will be referred to a good, compassionate, Endocrinologist who'll prescribe optimum thyroid hormones for you. It has to be done gradually.

When you go for your next blood test, get the earliest possible and fast (you can drink water). Leave about 24 hours between your dose of levo and the test and take it afterwards.

Always get a print-out of your blood test results with the ranges for your own records and you can post if you have a query.

If you've not had a Vit B12, Vit D, iron, ferritin and folate tested ask for these too. GP would usually do these.

Mandy_Davies profile image
Mandy_Davies in reply to shaws

Hi, total newbie and 1st post, and i'm looking at having my left thyoid node removed in june, can i ask why "When you go for your next blood test, get the earliest possible and fast (you can drink water). Leave about 24 hours between your dose of levo and the test and take it afterwards."surely your levo level would then be miniscule, would they get an accurate result?

Debeee profile image
Debeee

Very scary hearing the "C"word I know,it looks like your healing very well in your picture,I've had the same thing but with two operations 6 weeks apart,lymph glands removed etc,I've only just found this site but wish I had 3 years ago when I first became ill & was told I had depression by the gp,are you having any further treatment?

AngelaGM profile image
AngelaGM

Debeee, why did they think you where suffering from depression and what symptoms did you have?

Karengann, glad everything went well. Look after yourself and god bless x

Debeee profile image
Debeee in reply to AngelaGM

Hi AngelaGM,sorry for the late reply I've only just spotted your question,I had all the classic symptoms of an under active thyroid ie. Gaining weight despite being on a diet ( I had lost about 2 stone & was very fit ) legs felt like lead& I had low energy but I also had felt a lump in my neck. The doctor did the usual blood test so a week or so later I went back to be told " you haven't got an under active thyroid your results are normal,I think you are depressed" & a prescription for anti depressants was duly written,I took one! I was in shock because I was certain that I had an under active thyroid,I have no idea just what the actual results were but she did want to refer me to see an ENT. I went private & had an appointment before the referral letter was even written. I had a FNA & scan,the doctor told me immediately that I had a multinodular goitre,the biopsy result was 75 % chance it was benign,eventually I had the operations & the treatments etc . It was cancer in both sides & in 3 lymph nodes .

shaws profile image
shawsAdministrator in reply to Debeee

What a shock you must have had.

Rebec profile image
Rebec

What were your symptoms before, that you had to have the surgery in the first place?

Karengann profile image
Karengann in reply to Rebec

I felt like I had the flue and tired all the time and blood sugar drops no matter how much I eat it drops and I could not breath had be put on oxgyen and eating was a pain could not swollow it

What a neat scar. Mine's longer & lower down after hemi-thyroidectomy. Best wishes to you.

ThyroidThora profile image
ThyroidThora

Hi Karen,

I'm sorry to hear that the thyroid gland they've removed was cancerous. I too had thyroid cancer removed 3 years ago and it was a terrible blow. You might feel okay at the moment but, it is possible, that you will start to feel ill over the next few weeks. If this does happen then please feel free to PM me should you need someone to talk to. I've found it struggle because this type of cancer is so rare and I haven't managed to find a specific support group that can help.

Good luck.

TT xx

I'm so sorry your thyroid was malignant. I wish you the very best towards a full recovery.

Jake123- profile image
Jake123-

Hope u doing ok Hun after your surgeey

ElmaL profile image
ElmaL

I too had a complete Throidectomy 23years ago ,I have a problem keeping my weight down .Glad you got rid of the Cancer and you are on the road to recovery your wound is really neat .I got a word of advice from my surgeon to keep my scar out of the sun ,so just passing it on x

shaws profile image
shawsAdministrator in reply to ElmaL

This is a link re weight gain on levo only.

web.archive.org/web/2010103...

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