Fibromyalgia, SLE and Psoriasis among other illnesses

I have Psoriasis on my feet and have been seeing a dermatologist for years regarding this. After trying everything that he could I was then referred on to a different dermatologist. My problem is: that my psoriasis is very painful, often with pustules forming around my heels and have not been able to wear anything other than scuffs for the past 3 years. My dermatologist has told me that there was an injection that i may be able to take but had to see my rheumatologist first to see if this would be a viable option for me. On seeing my rheumatologist, she told me that she thought it would be fine to do this. On going back to my dermatologist, he then told me that my SLE could become worse with this treatment and he would not give it to me, he also suggested that the pain in my feet could be caused by fibromyalgia and not the psoriasis. I just feel completely frustrated and know that most of the pain is caused by the skin being tight over my feet.

Where can i go from here? Any suggestions

5 Replies

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  • I think you could benefit greatly from LDN (low dose naltrexone) which is an immune regulator, since your condition is autoimmune. As there are only few, light and passing side effects, there is really no risk in giving it a try and the improvement in autoimmune diseases is amazing for a lot of people.

    It is a prescription drug.

    Check out these websites for more info:

    lowdosenaltrexone.org

    ldnscience.org

    ldnresearch.org

    Wish you luck and relief from your issues!

  • How can I obtain LDN ? Is it prescription only? Would it be prescribed for Fibromyalgia ? Thank you Ging

  • It is a prescription drug only and is prescribed for fibromyalgia and a lot of other conditions.

    A lot of doctors don't know about it though, so it is good to refer the doctor to the websites and educate yourself also, so you know what you are asking for.

    I follow several Fb groups where I get a lot of support and information.

  • Many thanks - Ging

  • My psoriasis disappeared completely in my first six months on thyroxine. Are you properly medicated?

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