24 and have hashimotos....: Hi everyone when I... - Thyroid UK

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24 and have hashimotos....

Danielle1991 profile image
8 Replies

Hi everyone when I was diagnosed with hashimotos my doctor was really shocked as she said it happens a lot more to middle aged women. I was just wondering if there's anyone else who are in there 20s who have been diagnosed and have had difficulty with starting a family? Dealing with the terrible mood swings and generally feeling as the world are against you?

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Danielle1991 profile image
Danielle1991
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8 Replies
agataka profile image
agataka

Hi Danielle! I am 26 and have hyperthyroidism with possibly Graves. Unfortunately I have the same symptoms no energy, extremely tired, get angry very quickly. I am planning a wedding but I know that I am very bad person to live with at the moment. It is really depressing :/ especially when you loosing yourself somewhere. I am feel like diffrent person. Hope will be better. Take care. And remember you are not alone!

Danielle1991 profile image
Danielle1991 in reply to agataka

I hate the mood swings I have one minute I'm happy, really down (uncontrabally crying) the next really angry. I expect people hate me at times because of how angry I can get and it can be triggered by the smallest of things. I don't feel myself at all I feel as though iv lost all my sparkle and feel people really don't understand me at all. Wow I don't know how you are planning a wedding but I suppose some things take ur mind of how everything is actually affecting you sometimes have u got long until your big day ? All I read is middle aged people with thyroid problems. And I keep thinking why me I want to find out why I have it something must've triggered it. I just don't want it to control me as a person. And thankyou it means a lot. I have just been reading people's comments on this site for a while. Nt really knowing what to say. I really hope 2016 is a better year than last year for everyone ☺

agataka profile image
agataka in reply to Danielle1991

My 'big day' (it will be a small wedding only my, my future husband and our closest family parents, sisters, brothers) is in August. So not long left :) Nothing special but still I can't imagine myself in wedding dress. I feel awful, look very bad. More like whale than princess.

The thing is I never liked people like I become right now. Moody, always tired, no life.

My fiancée always talking about travelling. Spain, Portugal but when I will thing about hot places, long distance to walk which would make me sweat and tired and embarrassed of my body... I have never been like that.

Hope something will change this year. For better of course. We need to get know better our illness and get good treatment. But it is very difficult.

Take care Danielle

Danielle1991 profile image
Danielle1991 in reply to agataka

I'm sure you will look beautiful on your wedding day but I know what you mean I have lost confidence and do not want to do half the things I used to. Don't go in peak season to those places in Europe because it's not so bad then I went to a few parts of Spain last year out of season and it was perfect. I haye being too hot too it makes me irritable and moody. Try months like April, may beginning of June and September and even October it's still lovely. I don't really get on with lots of people I used to try and please everyone but I'm done with that now. When you get an illness it really makes u realise who is there for u. I'm sure you will have a fantastic day x

Hello Danielle,

Welcome to our forum and sorry to hear of your diagnosis.

Hashimoto’s is more common in middle aged women but can at any occur age.

Are you medicating?

Have you had iron and nutrient levels checked as thyroid function is improved with optimal levels?

You will need to have well controlled thyroid function to conceive because hypothyroidism is a big risk during pregnancy. This means good thyroid hormone levels, optimal nutrients and iron levels, good adrenal health and managed thyroid antibodies.

You need to discuss your plans with your GP as thyroid meds may need to be increased to reduce TSH level. A lower preconception TSH level will reduce the risk of TSH elevation during the first trimester when baby will be using your thyroid hormone for growth and development before his own develops .

Pregnancy affects the thyroid and you will need to be carefully monitored as a low TSH level is vital and low thyroid hormones ( ie insufficient meds ? ) can cause infertility, miscarriage or effect babies development.

A good read is The Root Cause by Izabella Wentz which will give you a good understanding of your auto immune disease and how to manage it.

Post any test results complete with ranges (numbers in brackets) for members to comment.

Flower

DR David Clarke advises on Hashimotos and pregnancy

drclark.typepad.com/dr_davi...

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Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

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Danielle1991 profile image
Danielle1991 in reply to

Hi flower,

I am currently on 75 mcg of Levo. My doctor has never gave me my tsh results but I am going to request them when I next go.

Do I have to ask for my levels to be tested in relation to iron and other supplements? Or is it included in my tsh tests ? She has tested me for celiacs disease but it was negative. Have anyone else gone gluten free even though testing negative ?

The doctor said apparently I shouldn't have any problems conceiving and I should only tell them when I am actually pregnant so they can up my dose. But hey reading from everything on here I don't think doctors in the UK know much about thyroid. It's just shocking were supposed to be a country that has the knowledge.

Has anyone felt like themselves again ? Also does Levo actually work for everyone ?

It's just surprising you think of things what has happened in your life and you tick them off and each one of your problems point to thyroid problems. I was only diagnosed because I had a itchy rash so they screened my blood. All my other symptoms I just put down to life.

I hope this doesn't ruin my life it's been hard to get my head around iv been signed off sick from work to try to adjust. My employer doesn't understand and just makes me feel like I'm lying. Life sucks at the moment but I won't let this beat me.

in reply to Danielle1991

Danielle,

Doctors often show complacency over treating Hashimotos because they consider there is no alternative treatment to Levothyroxine prescribed for hypothyroidism.

Gluten sensitivity is caused by molecular mimicry. The molecular structure of gliadin, the protein portion of gluten, closely resembles that of the thyroid gland. When gliadin breaches the protective gut barrier (leaky gut) and enters the blood stream, the immune system (antibodies) tags it for destruction an these antibodies can then cause the body to attack thyroid tissue.

Blood tests will only detect gluten antibodies in the blood stream where the gut is so permeable that gluten can easily pass through...this is a relatively advarnced stage of disease.

The immune system needs thyroid hormones to work properly and low thyroid hormone can encourage Hashi attacks, inflammation and anxiety. Medicating on optimal thyroid hormone replacement will help suppress further Hashi attacks.

Ask your doctor to test TSH, FT4 & FT3, Vit B12, Vit D, folate and ferritin. You have a right to your results and ensure to get the ranges. Post results in a new post complete with ranges (numbers in brackets) for members to comment.

If you are planning to conceive it is vital you get optimal thyroid meds, iron, nutrients and good adrenal health (stress hormone that provides cortisol amongst many other hormones required for good thyroid hormone function). Low/high cortisol will interfere with thyroid decreasing TSH, lowering thyroid production, inhibiting T4-T3 conversion & increasing T4-RT3 conversion. It will also indirectly effect blood sugar levels so very important to eat regular balanced meals.

There is evidence of increased fetal loss, and psychomotor and IQ deficits, in infants born to mothers with undiagnosed or inadequately treated hypothyroidism. Levothyroxine will also provide the necessary additional iodine for a healthy pregnancy in hypothyroidism.

Below is a link of NICE guidelines that your doctor should follow (until you get your specialist appointment) once you have conceived. If I were you I would print this off and give a copy to your doctor.

Life can suck Danielle so it is up to ourselves to become educated and endeavour to reduce high thyroid antibody levels through gluten free dieting and various supplements.

I hope you feel better soon.

Flower

NICE pregnancy guidelines in hypothyroidism

cks.nice.org.uk/hypothyroid...

This following link explains the importance of vitamins and where they may be obtained. This forum is supported by the charity ThyroidUK. You do not have to join the charity to benefit from this forum but by doing so you will be supporting the charity and also entitled to various discounts when buying supplements, as detailed in the link below.

thyroiduk.org.uk/tuk/treatm...

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Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

………………………………………………………………………………………………………………

Cavalli13 profile image
Cavalli13 in reply to Danielle1991

Hi Danielle,

I am 28 and diagnosed when I was 25 trying to have a baby but my Tsh was 5.45 and I couldnt get pregnant. I was fine at first with no treatment just irregular periods and tiredness but not drepessed or really ill. As soon as I started on levo I started to be ill, really really ill, mental and physical. Finally I decided to cut with levo, I tried differents treatments but I have not found yet the one who really suits me. At the moment I am not taking any meds, so imagine how is my life everyday. Sometimes I think that I am getting crazy because is not normal the things I can do in a normal day ( loosing things, mood swings, feeling that you are not the same as before...etc)

For my it is still very hard, but I think that I will find myself again one day.....or I hope so..

Anyway I can suggest you to try gluten free because it really helps, at first it will be a little difficult but then you will use to it.

Get your vitamins level tested, I did and I am taking iron, vitamin d, b complex, vitamin c and d.

And finally try to change to NTD(for us with hashimotos I dont know if is the best option due to the antibodies attack I tried Erfa and it was horrible) or try to add some T3 to your dose to see if it helps.

Hope everything will be better for us soon and try to have a normal life and a healthy baby in a future :)

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