Hypothyroid

[Pig4u]

For 8 yrs I have become dizzy / swimmy about30 mins after rising it is very unpleasant and basically stops me doing much .Ihave been through every possible medication for hypothyroidism and am now into my third week on 20 Mcg T3 .PLEASE has anyone experieced this horrible feeling and found a cure? Also do I have to split the dose of T3 as the only time I had relief in the past was on T3 20mcg taken once in the morning .

[Emjaytee]

Hi there,

I have experienced this feeling for several years, even before waking, which might sound odd but I'm even experiencing it in my early morning dreams, where I'm so dizzy I cannot stand up and continually lurching and falling whilst trying to get somewhere in those dreams. The dreams are always a little unpleasant and if they wake me and I consequently get up....my head is still dizzy/swimmy, it feels as though I've been drugged and it can take up to half an hour to feel balanced again. When I have had to get up during one of these episodes, I stagger as though I am drunk as a skunk.... really unpleasant and unsettling.

In my case, it may have been to do with B12 deficiency or borderline hypothyroidism but I'm inclined to think my symptoms started with the B12 deficiency, and I have experienced it less often after self-treating with B12 injections, though coincidentally, they have returned this past week, several mornings in a row ...... which could also be due to forgetting to inject for a couple of weeks because I was generally feeling a lot better in myself..

This is all guesswork of course, no point in me trying to get my GP to get to the bottom of it and it may be completely irrelevant to what is causing your horrible symptoms but have you had your B12 levels checked?

[Emjaytee]

Just found an interesting article on "gluten ataxia" which causes dizziness .... are you gluten free?

wheat-free.org/celiac-disea...

[Pig4u in reply to Emjaytee]

Thank you. Emjaytee I have recently had a celiac test and was pronounced clear I am wondering about B12

[Emjaytee in reply to Pig4u]

It does say you can suffer from it if you have gluten intolerance without being celiac, which is what makes it very difficult to diagnose (I think that's what it means) :

Quote....

"Many celiac disease or gluten intolerance sufferers may not know about gluten ataxia as it's not something that is in the constant forefront of the media, unlike gluten free itself.

So what is gluten ataxia? Gluten ataxia is a somewhat mysterious neurological condition related to gluten sensitivity, and while it is rare, it is a serious medical condition where it exists. As it is a progressive disease, it can cause permanent damage to the cerebellum if not treated promptly, however many people struggle with symptoms for years because of the difficulty in diagnosing it.

It's also important to note that often there are no gastrointestinal symptoms, so celiac disease may not be suspected for some considerable time. And as there are currently no recognised medical tests available for its diagnosis, it can be an upsetting, and stressful time, when symptoms first start to appear and begin to impact normal, daily life."

....End quote.

Has your GP tested B12 levels? My Pernicious Anaemia went undiagnosed for approx 2 decades even though they did a whole lot of blood tests when my symptoms weren't appearing to go away by themselves, and became unbearable enough for me to go to the docs in the first place.

[Clutter]

Pig4u, it might be low blood sugar. Try having breakfast as soon as you rise. Take your thyroid meds two hours later. You can take 20mcg T3 in one dose if you prefer.