My 27 yr old daughter was born with congenital hypothyroidism. She has been having numerous problems for a few years. In 2010 her blood result was tsh 0.28 t3 abnormally high. Result stated to contact patient which they didn't. Tsh went from 10 to 6 in a day (whilst in hospital in September. Then went up to 17 but t4 normal. Her dosage has been 225 for some time. She took vitamin supplements to aid thyroxine absorbtion when discharged which resulted in her throat swelling suddenly affecting breathing, Dr felt throat and thought a multi nodular goitre. ultrasound 2 weeks later said not. Her tsh went to 2 in a short time After the swelling went down. She is currently in hospital and her mental state has deteriorated markedly in 2 days. (paranoia), The hospital has underdosed her whilst in despite my daughter stating her dosage repeatedly When she went in in and her mental state was clear. She appears to have trouble converting Thyroxine? can anyone help as both hospitals have not let her see an endocrinologist despite a cardiac Dr saying she needed to see one after her stress treadmill test had to be stopped as they said it would be dangerous to continue.
I am very worried this situation will cause permanent damage as it has been going on for years,
Any help would be appreciated