Advice most welcome

Hi everyone, I was prescribed Thyroxine about 10 years ago, dosage was increased twice to 150 mg but still felt no better for it. Through my 2 pregnancies 7.5 and 6 years ago i felt like hell on earth even though it was increased to 200mg returning to 150 again until about a year ago when I was told it needed to be reduced to 125mg.

I have been through the hoops like most trying to be heard that I feel awful with no improvement of symptoms and finally gave up as there seemed no answer as my levels were within range.

My worst symptoms are continual tiredness and brain fog/ memory problems the latter seems worse of late not being able to retain info, remember things and conversations and string a sensible sentence together at times. I am 41 with two young children and sick to the back teeth of feeling like poo and made to feel like a hypochondriac.

Has treatment changed in the last couple of years or is there any other path I can take in a last ditch attempt to sort myself out.

Thanks everyone x

5 Replies

  • Welcome to the forum, Ju01749.

    Unfortunately there has been no improvement in the treatment of hypothyroidism for years. There are things you can do to help yourself. If you have your recent thyroid results please post them with the lab ref ranges (the figures in brackets after your results). If you don't have them ask your GP receptionist or practice manager for a printout and post them in a new question.

    Hypothyroid patients are often low/deficient in ferritin, vitamin D, B12 and folate. Symptoms can be similar to hypothyroid symptoms so ask for blood tests and post your results for comment.

    Don't accept being told your results are 'normal' or 'fine'. This just means they are within defined ranges. It doesn't mean they are optimal which we need.

  • Thank you, will see if they will retest me haven't been for quite sometime as gave up on it and the Drs receptionist wouldn't let me have the results last time. I will ask about the other blood tests too.

  • Be very sure that you do not take any thyroid meds or vitamins or supplements in the 24 hours before a test as that can skew test results horrendously

  • Ju, good idea to have a test if it's been a while since your last. Fyi the Data Protection Act entitles patients to their results free of charge within 40 days of testing. If the receptionist will not give them to you ask to speak to the practice manager. Practices are entitled to charge a nominal £1/£2 for printer ink and paper but if they want to charge more you are entitled to ask for access to a computer to view and note your results.

  • Helloju01749,

    Sorry to hear that you are not feeling well.

    You need to ensure that your thyroid hormone replacement medication is working.....

    -It is important to take your pill on an empty stomach with a glass of water, 1 hour before food, 2 hours before supplements and 4 hours before calcium, iron or vit D supplements.

    -Test Cortisol levels using the Genova saliva test as thyroid meds require adequate levels to work.

    -Test Vit B12, Vit D, Ferritin and Folate as only optimal levels will allow absorption of thyroid meds.

    -Ensure better med absorption by taking sups with 1 Teaspoon of Apple Cider Vinegar or lemon.

    -Encourage good gut health and blood sugar levels by eating a clean nutrient dense diet.

    - Treat any gut issues such as candida, H.pylori infection, SIBO or food intolerance.

    - Supplement any low sex hormone as appropriate.

    Post blood test results so members can advise if thyroid hormones are optimised.


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