Newly Diagnosed: Hi all I have recently been... - Thyroid UK

Thyroid UK

140,917 members166,037 posts

Newly Diagnosed

baz57 profile image
6 Replies

Hi all

I have recently been diagnosed with under active thyroid. have been taking levothyroxine for 3 months and just about to go back for a blood test to see if its having any effect! i don't think its working very well though the carpal tunnel pain has lessened, I still feel drained and wooly headed most of the time, also my hair has gone very very dry despite using oils etc it still looks like cotton wool any suggestions?

My GP is not very sympathetic and seems to think I should 'just get on with it' I'm genarally a happy person but lately I have got quite low is this normal?

Written by
baz57 profile image
baz57
To view profiles and participate in discussions please or .
Read more about...
6 Replies
shaws profile image
shawsAdministrator

Hi Baz,

There's not much information on your Profile page about your thyroid history. I note you were diagnosed 3 months ago but I don't know whether your dose of levo was increased since first beginning it.

I hope you have had an increase every 6 weeks? together with a new blood test.

When you go for a blood test, have it as early as possible. Leave a gap of approx 24 hours between levo and test. I have read it's best to have a fasting test.

Always get a print-out of your results with the ranges and post for comments. If you've not also had a Vitamin B12, Vit D, iron, ferritin and folate ask for these to be done too. We are usually deficient and it's important all minerals/vits are towards the upper range.

Ignore your GP if he's not sympathetic, you have to look after yourself and read and learn as much as possible. It's not as easy as most docs think, i.e. take 1 tablet, keep bloods in range and patients' dose doesn't need increasing. Complaints/symptoms are ignored

baz57 profile image
baz57 in reply toshaws

Hi Shaws

Thanks for the reply

I have been on the same dose of levothyroxin 5mcg since i was diagnosed in february I was told not to come for bloods until three months was up. As i said my GP is not very forthcoming with information so I have no idea what the other results were I do know I had a full check done. I had learned more about the condition from the forum than I have from the medics.

I am going for bloods tomorrow morning so thanks for letting me know about leaving 24hrs between tab and test ( I always take mine at 5.30 when I get up and have breakfast at 7am) and I did'nt know about that rule (nobody tells you!!!) Also since taking the tablets I have had what seems like constant acid indigestion is this 'normal'

shaws profile image
shawsAdministrator in reply tobaz57

Did you mean 50mcg of levo (not 5mcg surely although I wouldn't be surprised in the least). Believe me, many medics appear to know only one thing (I am being mean and will say two things) that is - to only do the TSH and prescribe levo until TSH is in range. That's us done and dusted and everything else is nothing to do with the thyroid gland (a fairytale). If we have continuing or new symptoms it's usually to do with a combination of too low a dose and also vitamins/minerals may also be low but, if in range, that's o.k. by them as well.

We would appear to be the cinderella of diseases, it would seem.

If your dose was 50mcg it's too long between diagnosis and 3 months before you have another. Look for another GP who is a bit more knowledgeable (pot luck I am afraid).

Low acid is another thing that can happen in hypo. If you take Apple Cider Vinegar in water or juice (some don't like the taste) and take it either before, after, or during meals particularly if they contain protein as the normal stomach acid dissolves the protein. Some people, myself included, take Betaine with pepsin tablets. If on ACV it's best if it's 'raw' or organic.

modernherbalist.com/betaine...

baz57 profile image
baz57 in reply toshaws

Sorry yes it is 50 mcg typing error! I agree my doctor was pretty blase about the whole thing and he did dismiss other symptoms as 'my age, think I will cancel appointment with him and make one with another one. I will give the acv a go as I am currently popping antacids like they are going out of fashion!

shaws profile image
shawsAdministrator in reply tobaz57

The symptoms of low/high acid are so similar and if you do have low acid you don't need antacids.

Some might have high acid and need antacids but this is another link:

stopthethyroidmadness.com/s...

We have to learn so much as hypo affects us from top to toe until we are on an optimum of medication (i.e. sufficient to remove all clinical symptoms).

baz57 profile image
baz57 in reply toshaws

Thanks again for your replies they have been very helpful i will post again when I get results of bloods and hope someone will explain it all to me. Take Care

Not what you're looking for?

You may also like...

Newly Diagnosed!

Thought I would move myself to here now that it has now been confirmed that I am Hashi :(...
Jefner profile image

newly diagnosed.. Longstanding hashimotos

Hi everyone. I finally got a diagnosis today of hashimotos after 27 years of questing for an...

Newly Diagnosed

Hi I have just been diagnosed with an under active thyroid, after begging for help. I had piled on...
lt1806 profile image

Newly diagnosed

Hello everyone, I was diagnosed with hypothyroidism about 10 days ago I've been started on...
Hattie19 profile image

Newly diagnosed

Hi guys this is the third time I’ve written this 😂 I’ve recently been diagnosed with hashimotos...
Niknak99 profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.