Hi I have just joined this forum, I am 15 and I have congenital hypothyroidism (my brother,aged 13 also has it) when my mum was pregnant with David there was no chance he could get it, but, he does.
Does anyone know if this runs in families and if so could I pass it onto to my future children?
Hannah, I think it depends on the reason for congenital hypothyroidism. Is it due to iodine and selenium deficiency? Or is it because the thyroid gland does not exist?
I would expect that statistics on congential hypoththyroidism and reproduction probaby doesn't exist because historically people born with hypothyroidism would not have been well enough to have children.
Hannah, There is a genetic connection with primary hypothyroidism but I don't know whether congenital hypothyroidism is genetic or due to undiagnosed hypothyroidism or some abnormality during your mother's pregnancies. Bear in mind that if it is genetic any children you have will inherit half their genes from your partner and may escape any genetic predisposition.
Hannah, welcome & mores to the point - how are you? (no need to answer tonight 'tho!)
I'd be interested in how you (and your brother) are dealing with the condition as I work in a school and I would like everyone to be more aware of this condition. I know school staff have diabetes training but I've seen no mention of Thyroid issues in my 5 years there - apart from seeing pupils (& staff) getting mis-diagnosed with depression/ anxiety before Thyroid is eventually picked up (often in times of change - puberty, pregnancy, menopause etc.) Yet it remains a recognised condition! (and on the SIMS list).
To date, I've been unable to source a relevant (look-at-me-now) leaflet to pin on the staffroom notice board - for staff to sit up & take notice (sorry guys but I've been looking for years - please point me to one).
You're too young for Thyroid stuff - have a look at youtube John Bergman - forget genetics for a moment, it's not pre-disposed - the body can heal itself given the right tools - look first at diet & vitamin/mineral deficiencies, start with VitD, iron (ferritin) folate & B12... Jane 
I am coping very well with the condition, however I do have to take some time out of school for appointments with my doctors. During puberty I was quite poorly and it meant that my levothyroxine had to be increased a lot which worried doctors because last time they increased it my heart stared to beat irregally. At school on,y a handful of people know about it and they are all very supportive. As I am in year 11 at the moment I have quite a lot to deal with my exams and this means that I am really tired because of it, my hands are always cold and I am pick bugs up really easily
Hi Hannah99,
That is a difficult question to answer because there doesn't appear to be a lot of research done as of yet. Previously people who were very ill with untreated hypothyroidism would have probably been too ill to have babies.
Nowadays hypothyroidism is very common and babies are routinely tested as you probably were.
Do you and your brother take a Levithyroxine pill every day like myself?
I hope you are feeling great as a 15 year old should. However, remember your body will always do better with a healthy diet and lots of sleep. We hypo people need to look after ourselves.
Always post with any more questions Hannah99.
Yes we both take levothyroxine,
Just to add that if you do decide to have children in the future, make sure your bloods are monitored regularly, as TSH can raise significantly during pregnancy and this can cause miscarriage. DON'T let the doctors tell you there is no need, there is! Insist!
Hypothyroidism but skinny
Hypothyroidism? 
Hypothyroidism
