Advice on going private and NDT

Hi all,

I joined this site a year ago (but never posted) in the hopes of helping my sis when she was diagnosed with Hypothyroidism. At the moment she is at the end of her tether and so I was wondering if there was anyone out there who could recommend a Dr or Endo (NHS or Private) in the Wirral/North West area? She has been on Levothyroxine for a year now but she is considering NDT and her GP has never heard of NDT.

Although her blood results are showing improvement; after a year on Levo, there doesn't appear to be much change in her physical symptoms. Ok, her eye's don't look as though they are ready to pop right out of her head anymore, but the sight in the one good eye she has, has dropped by 60% since she was diagnosed a year ago.

7 Replies

  • Send an email to Louise Warvill for the list of Docs to see if any in your area.

  • Oh that is great Treepie, thank you so much for replying. I'll get onto doing that right now. :)

  • I went to see a Endo at The Royal hospital in Dr Ahmeds prcatice. (It wasn't Dr Ahmed, who I believe is very good) It was another Dr, if you want the name PM me.

  • Hi tickle2014, ensure fro the list from Louise that you go to an endo who will prescribe NDT. Get a private prescription from your end ( no extra charge). Send it to one of the chemists from the Thyroid uk website. Be prepared to cut your tablets as you adjust dosage. If you get on OK then you can obtain NDT in the future from USA chemist on the internet without prescription. Good luck

  • Good advice stephensmith, oh thank you so much.

  • I'm in the same boat, I only joined yesterday and found it really helpful, your sister should flick through this site and ask people's advice iv found it really wife as spoken to a few people including a nurse and they said it could take up to a year maybe longer to start feeling better, my wife got a private doctor in essex area, i thick she done it through bupa. I haven't gone down that road yet I'm just waiting for blood tests but I think it can be expensive but when it comes to your health you would pay anything

  • Hi Tony86, I think I've been a member for about 9 months now gleaned a shed load of useful information for her, a lot of which she has taken onboard. But we have chosen up til now to sit on the idea of going private or self medication for that very reason - it will take a year at least to start feeling well again.

    Ok, they body has a lot of catching up to do, but she's been on Levo since last June and, ok, her eyes are not bulging out of her head any more, but no other signs of improvement. Ok, her lab results say they are improving, either just within range or at least getting closer to it. And yet several other debilitating symptoms have developed since being on Levo and other have gotten worse.

    We can't help feeling she is missing a vital ingredient - no matter how much petrol you pump into your car, the car still won't start, because either the battery is flat or a spark plug needs replacing! That's an analogy that that keeps popping into my head when I'm thinking about it, wondering what's the missing link. She's missing a spark to ignite the wood pile (the Levothyroxine).

    We are waiting until the outcome of her next endo appointment and see what the lab results now reveal before we do anything else yet. But I want to have all the relevant research and information at hand ready for her to go through with the rest of our family; to weigh up all the pros and cons before she decides which road to take next.

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