Propylthiouracil

[lisa_59]

Hi I've been on Carbimazole for a year & my endo wants me to try Propylthiouracil has anyone out there been on both & how do they compare?

[elayneg]

Hi Lisa

I have been on both the PTU works better for me I have to say. I am one of those people who gain weight when Hyper I just kept on gaining on cabrimazole the PTU does not have that affect on me.

It doesn't work for everyone I am just happier on it although I have to say I have had a battle to get it. The last Endo I seen refused point blank to give me it and I really struggled for 18 months.

This time with the PTU my bloods were back to normal within 6 weeks. It is strange that a lot of doctors don't like the PTU because if you read the data sheets for both Cabrimazole and PTU the risks are identical.

It might not work for you I am just saying it works for me and I am happy with it there are lots of people it doesn't work for you can only try it.

Good luck

Elayne

[lisa_59 in reply to elayneg]

Thanks Elaine I will give it a try I think. I'm just a bit concerned about the dosage - 200mg a day whereas with the Carbimazole I'm only on 20. Are you still on medication?

[Silver_Fairy in reply to lisa_59]

Apparently, 5mg of Carb is equivalent to 50mg of propylthiouracil.

[Silver_Fairy]

Did the Endo give you a reason for wanting to change?

[lisa_59 in reply to Silver_Fairy]

Hi my Endo is keen for me to try the Iodine treatment or have my Thyroid removed. I'm not ready for that yet. I feel nauseous most days so he suggested we try this treatment first

[Silver_Fairy in reply to lisa_59]

Definitely dont be pushed into RAI or surgery until you are sure. Do lots of research!

I refused both and now off the Carb (having been on it with Block & Replace and Carb on its own for about 4+ years)

[lisa_59]

I'm sticking it out for as long as I can. I've read such awful things about people fighting to get the right dosage when they are underactive. I am managing to work & I think when you go underactive it starts all sorts of other problems off. Do you feel better now?

[Liseyloo1]

Hi Lisa - I have just been reading your post and I am on PTU. I am wondering what has happened on your journey? Did you end up taking PTU? How are you?