Levo saga continues...any suggestions?

My last post was a while ago ( last June) when I had been on a 'thyroid journey' and had my Levo increased to 100mcg after an increase from 50, to 75 then the 100.

Since then I have gone up to 125, and for the last 4 weeks have been on a 125/150 alternate days split as I asked my Dr for an increase as I feel awful. I still feel awful.

My TSH range seems to settle after every dose change and remains at about 0.3, although during the past two years I have always felt best when the TSH was suppressed.

I am 44 and feel 100, dragging myself out of bed and desperately trying to stay awake during the day is depressing. My GP asked for an endo, but they will not see me as my levels are 'normal'.

Any suggestions??????

5 Replies

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  • Cal1971, TSH testing isn't enough to determine whether your current dose is enabling you to convert sufficient T4 to T3. If you can't persuade your GP to test FT4 and FT3 in addition to TSH you can order private tests from Blue Horizon and Genova via thyroiduk.org.uk/tuk/testin...

    Ask your GP to test ferritin, vitamin D, B12 and folate which are often deficient/low in hypothyroid patients and can cause musculoskeletal pain, fatigue and low mood similar to hypothyroid symptoms.

  • I am aware of the TSH debarcle!! I had all tests on everything possible last time and was told they were all fine, but stupidly didn't get print out of the full results- am back for another blood test in a few weeks so will get the printouts and the FT3 and 4 levels too.

  • Also unfortunately do not have the funds for private tests :(

  • Cal, ask the GP receptionist or practice manager for a printout of your last tests.

  • Might be worth getting tested for antibodies

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