Any different treatment needed when you have no thyroid?

As I have no thyroid tissue left (Autoimmune Hypo) do I need any other supplements or wwill I be ok on levo and B12 injections for PA? I've heard people say you should get treated a your antibodies are still attacking you but GPs don't give treatment for this well, only steroid treatment and antihystimines which are not long term answers.

I am working with a nutritionist but has anyone any experience they can pass on?

5 Replies

  • If you have antibodies you should look at going gluten free, but I'm sure your nutritionist will help you with that.

    You might also want to look at Natural Dessicated Thyroid if you find you don't do well on thyroxine. Your thyroid produces (or produced in your case) at least 5 things - T4, T3, T2, T1 and calcitonin. I say "at least" as new hormones are still being found and it's likely the thyroid produces others that are not yet known.

    The actions of T2 and T1 are ignored by endos as they don't know what they do, so claim you don't need them. Calcitonin protects against osteoporosis.

  • Thank you, this is the first time I've heard of some of these.

  • Just a note from my nutritionist. Re NDT / glandulars: Apart from not being vegetarian, they don’t contain active hormones and so wouldn’t build up your blood levels, but they work by balancing and supporting thyroid production – so no use if you have no thyroid. Calcitonin is one of the hormones produced by the parathyroid – necessary for bone and blood levels of calcium. - and I think I've still got my parathyroid. I have to check this.

  • Your nutritionist is seriously misguided, to be polite about it. I think the people taking NDT would disagree about the hormones being active. In fact I think they would say they are very active!

    Read this. All of it, it's a bit long

  • Winschild, I believe Hashimoto's antibodies go away when there is no longer a thyroid gland to attack, unlike Graves which can go on to attack other organs. I had Hashi's prior to thyroidectomy for thyCa and thyroglobulin and thyroglobulin antibody tests show there is no thyroid activity.

    I wasn't tolerating Levothyroxine only and wasn't converting T4 to T3 well so I'm prescribed Levothyroxine (T4) and Liothyronine (T3).

    I had several vitamin deficiencies and low B12 last year so I supplement vitD3, B12, B complex, magnesium, zinc and vitC.

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