feel worse: I have had hashimotos for 14 years... - Thyroid UK

Thyroid UK

140,467 members165,262 posts

feel worse

susiebow profile image
7 Replies

I have had hashimotos for 14 years ,on thyroxine.

Went haywire over a year ago when tsh unrecordable.

Been really ill eversince.

All test been within range.

I now feel far worse than I did before on thyroxine.

Cannot work.

Why is this.

Written by
susiebow profile image
susiebow
To view profiles and participate in discussions please or .
Read more about...
7 Replies
galathea profile image
galathea

All tests within range? even the free and the reverse t3.?

It seems to be an often repeated story, people do well with levo for 10 or 12 years then it stops working.

It may be that you can no longer convert t4 into t3,

Or your adrenals might have had enough of propping you up. ( saliva test)

Or you might have too much rT3

Or too little iron or ferritin

There is a reason..... Detective hat on... You now h ave to find it.

Xx

G

susiebow profile image
susiebow in reply to galathea

Thanks Galathea ,the only blood test I have not had is rt3 ,I will get it done soon.Thanks for the reply,I am so scared it is not the thyroid that is causing issue ,but had all sorts of test which thankfully are normal.

It is just that you feel so alone and abadaned by medical services.Fear is a terrible thing.

galathea profile image
galathea in reply to susiebow

Hi Susie, So if its not your thyroid, its probably one of the myriad of things which can affect it. Fear only happens when you face the unknown... But be systematic, first thing to do is start taking your temperature three times a day, and plot the average on a graph.... You will then get some idea if the problem is adrenal or thyroid.... or neither.

Download a chart and instructions from... drrind.com/therapies/metabo...

Xx

susiebow profile image
susiebow in reply to galathea

Thanks Galathea

Kitten-whiskers profile image
Kitten-whiskers

Hello Susie,

Sorry to hear you are so poorly.

Maybe you need to have the ASI saliva Test done - to check you Adrenals, they can be a big part of the problem, they certainly where in my case, maybe in the mean time you could have regular doses of buffered vitamin C and maybe some Liquorice and Gingseng Tincture

Best wishes

Debs

susiebow profile image
susiebow in reply to Kitten-whiskers

Thanks for info and support

Kitten-whiskers profile image
Kitten-whiskers in reply to susiebow

Your welcome. I know when you feel as ill as you do that you can feel it will never get better, but it does, little changes add up and with time your health will improve. I was extremely poorly like you but now thanks to a good selection of vitamins, removing certain things from my diet, adrenal support and the right medication - thiings are finally picking up and I am sure they will for you as well. Best wishes Debs

Not what you're looking for?

You may also like...

Swollen tongue worse since starting thyroxine.

Hi, I'm newly diagnosed and have been on levothyroxine for seven weeks, increased to 100mg from...

Feeling worse on Nature Throid

Many of you have written posts describing tough times when starting NDT. I am full of admiration...

Expected to feel worse!

Hi all! I’ve been taking 0.5ml of liquid levothyroxcine instead of 5ml! My mistake and gradually...

I FEEL GREAT...but

I'm on 175 mcg daily of thyroxine. Have been for years. But my doctor wants to cut dose right down...

Feel worse since starting Levothyroxine

After starting on 25mcg of Levothyroxine for Hashimotos diagnosis I actually feel worse. Painful...