As someone quite new to these forums, despite 20 years of being hypothyroid, thanks to Hashimoto's, the common theme throughout is how ill-educated and uninformed GPs and even many endocrinologists are in the realities of living with and treating this condition. Surely there must be something we can do as a group to change this? Does anyone know if there is any lobby group I could lend my voice to?
I looked into forums as I have reached the end of my tether after 20 years of high dose levothyroxine, inability to lose weight and a general day to day feeling of everything just being too much effort - though I do make myself perform functionally. Although it is wonderful to find all the support I have through forums like this, wouldn't it be even more amazing to be able to go to my GP who, if she was unsure herself, would refer me to an endocrinologist who would understand all the tests I would need to have, the diet I would need to adopt, the deficiencies I have that can be helped by supplements, and advice on which? It is a crazy state of affairs that people are sharing their test results on Facebook for us to diagnose and comment on. I was thinking of beginning by contacting the Royal College of Physicians to ask why this state of affairs persists and why few health professionals seems to be au fait with the latest thinking and research and approaches to treatment. I don't believe my doctor knows I have Hashimoto's or would know what to do about it if she did. She sees my hypo thyroidism as isolated from all those other auto-immune problems I have, including my psoriasis, aching muscles, arthritis, multiple food allergies, Reynaud's, gall bladder removal etc. And that is all I expect from her too. No help or understanding whatsoever. How can we change this? There must be a way.