My daughter is now one year on from having a pituitary tumour removed.
The problem is she has been left high and dry in the endocrine aftercare department. Her thyroid isn't functioning properly and after six months of insisting we get T3 T4 checked, they found that the surgery had affected her thyrotrophin production. She was grudgingly put on Levo by her endo in South West Wales in June, but she has conversion issues so consequently her T3 is very low. Is there any doctor who will prescribe Armour, as she doesn't tolerate T4 well.
She has been on Hydrocortisone 3 x daily since the surgery and is really struggling with tiredness, apathy and depression. Last December we nearly lost her. Her surgeon at the QE in Birmingham now acknowledges that some damage had occurred to part of the pituitary gland, (either through the growth of the tumour, or the surgery itself), but the other crucial areas of the pituitary gland have never even been tested for function. She is suffering with terrible hormonal issues and her monthly cycle is non existent and her overall recovery just isn't happening.
Does anyone know of a good endo within a hundred miles or so of Pembrokeshire. Either NHS or private. Nothing could have prepared us for this. She has tried everything possible herself with diet and supplements but we really need someone who knows what they're doing to help us now. Thanks for any advice you can give.