So been informed by my gp this week that my bloods results have come back, 2 positives, the rheumatoid arthritis tests have come back as negatives, Woop Woop - official label is now osteoarthritis in my lower back; however.........there is always a but isn't there ..............blood test for kidneys has come back as stage 3a CKD (49) and my parathyroid as 92 &still vitamin D deficent, urghhh. Now the parathyroid is a new one, one which I had never heard about, but a test had been done 2yrs ago and it was 92 then, alas no one took any notice of the result, until my current gp noticed it and retested me - still at 92.
Now can anyone tell me what is supposed to happen as my gp is unsure and said i have Secondary Parathroidism - keep taking my vitamins d (adcal d3) and have rest done in 12 months time.....................Erm is that it ????
Any help on the Parathyroidism would be great as I have never heard of it before & everything on the internet sounds like scary stuff.
Written by
missy1967
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Here is the most important fact on this page: since vitamin D is required for humans to absorb calcium in their intestines, a low vitamin D cannot ever be the cause of high blood calcium. This fact is not debatable. Thus, if you have a low vitamin D and your calcium is above 10.0, then the high calcium in your blood must have come from somewhere else other than your diet (it came from your bones). Thus, if you have a low vitamin D, and a calcium level above 10.1, then you are almost guaranteed to have primary hyperparathyroidism and need surgery to remove the parathyroid tumor. A low vitamin D cannot ever be the cause of high blood calcium. Keep reading, because most doctors get confused between the yellow and the blue blobs.
My Doctor Said I May Have Secondary Hyperparathyroidism.
My Doctor Gave me LOTS of Vitamin D for my Low Vitamin D Level.
The most common mistake we see from family doctors and endocrinologists regarding the diagnosis of primary hyperparathyroidism is that the low vitamin D confuses them and they think the patient has SECONDARY hyperparathyroidism. In other words, they think the low vitamin D was the CAUSE of the high blood calcium because the low vitamin D caused the parathyroid glands to become over-active. They then think that they can fix the high calcium by giving you high doses of vitamin D. We're here to tell you that there is no such thing as secondary hyperparathyroidism caused by low vitamin D that results in calcium levels above 10.1. No Such Thing. These doctors don't understand the graph above, and don't understand that almost all patients (84%) with primary hyperparathyroidism have a low vitamin D (average was 21.4 ng/ml in our last 18,000 patients--right in the middle of the blue blob). So, these doctors will say: "your vitamin D is low, and your calcium is a little high, I think you may have secondary hyperparathyroidism due to the low vitamin D, so here is a prescription for 10,000 (or 50,000) units of vitamin D. Take this high dose of vitamin D and come back in 3 months and we will check your calcium and vitamin D levels again". Trust me folks, those exact words will be said--we hear it dozens of times per day--and it is wrong every time. Since vitamin D is required to absorb calcium in our diet (this is the primary function of vitamin D), then a low vitamin D will cause you to absorb LESS calcium, not more.
If you are over 35 years of age, and your blood calcium is high (over 10.1) you are almost certain to have primary hyperparathyroidism--a disease caused by a tumor. If your blood calcium is high and your vitamin D level is low, then you are almost guaranteed to have a parathyroid tumor (primary hyperparathyroidism). Keep reading... you are learning a lot here, and will know more than your doctor in about 5 more minutes.
If your endocrinologist tells you that your calcium is high because your Vitamin D levels are low... and wants to give you Vitamin D to make your calcium go down... then you should print this page and take it to them.
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