Hi I have been on thyronorm 75 mg from two mon... - Thyroid UK

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Hi I have been on thyronorm 75 mg from two months. My anti thyroid peroxides antibodies level is >1300.

shalani profile image
5 Replies

One of my friend doctor who I had previously visited for urticaria. Said that the skin allergy I was getting was autoimmune urticaria and that was because of my antibody levels being very. He had asked me to go to a different doctor and get my meds right and that I'm actually not treating the anti body problem but only taking a supplement for thyroid. And I should try getting to the cause of the problem?

Are there anymore tests I can take ?

Is he actually right that my meds are not correct ?

Are they meds to treat the antibody ( because my endocrinlogist said it can't be treated )?

What is basically the underlying cause for our immune system to attack our body tissue ?

My tsh level is 61 . please help me ..

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shalani profile image
shalani
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5 Replies

Hi -I'm sure others will come and soon and offer more information about how high your Perodoxes antibody and your TSH is. But I do know a bit about autoimmune chronic urticaria and the specialist you need referring to as soon as possible is a dermatologist or an immunologist or both. I agree with your doctor friend. Having chronic hives is a sign that your immune system is very overactive and a specialist in autoimmune diseases needs to see you and try to get to the bottom of what is behind this. However it may well be that the hives are ideopathic and only a skin biopsy and someone used to dealing with quite rare skin problems can diagnose and treat this. Please push your GP for a referral as soon as you can and don't take no for an answer!

Best wishes,

Twitchy

kosmickaz profile image
kosmickaz

LDN (Low Dose Naltrexone) would help your antibody load. Heard of it?

Its an unlicensed medicine that many (including me) are taking for Hashimotos disease (and many other conditions). I pay for it privately through Dickson's chemist Glasgow an NHS pharmacy that compounds the medication in Glasgow.

LDN can reverse the autoimmune disease and in me a few weeks after taking it my antibody load was 38 having been in the hundreds...(a gluten free diet s also essential for this).

Most Dr's know nothing about it and big pharma won't run trials to get it licensed because there is no money it it ...

lowdosenaltrexone.org

ldnresearchtrust.org

I have info packs I can send to you electronically if you are interested - LDN costs me around £22 a month - worth every penny in my humble opinion...

helvella profile image
helvellaAdministratorThyroid UK in reply to kosmickaz

Although it makes little difference in the real world, Naltrexone is licensed in the UK ...

For use as an additional therapy within a comprehensive treatment program including psychological guidance for detoxified patients who have been opioid-dependent & alcohol dependence to support abstinence.

medicines.org.uk/emc/medici...

It is, therefore being used off-label for autoimmune disorders. That it is licensed at all might help some doctors to be more comfortable at prescribing it or supporting its use.

Rod

kosmickaz profile image
kosmickaz in reply to helvella

Yes, its licensed for its original purpose (drug and alcohol withdrawal), but not for what I take it for - which is the important point...I have tried approaching numerous Dr's and they won't support it's use for autoimmune disease control...

Jemma2013 profile image
Jemma2013

That's terrible though - aren't doctors aware of these new drugs? I have Hashimoto's (TPO antibodies >1000) but so far TSH and T4 within range so am receiving no treatment despite many of the usual symptoms. I've been on Hydroxychloroquine for psoriatic-type arthritis for a few months (courtesy of my rheumatologist) - as I know that that works by suppressing the immune system, I hope that it may also help lower my TPO antibody count. Has anyone had any positive results from this?

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