Endo. said Ferritin should be over 100 for ever... - Thyroid UK

Thyroid UK

140,948 members166,084 posts

Endo. said Ferritin should be over 100 for everyone

lucylocks profile image
14 Replies

Hi

Saw a second endo. this week who has ordered lots of tests for me.

He said my Ferritin at 65 range 15 - 300 is low and should be over 100 I said yes I know people who are hypo need it higher and his reply was not just hypo people but for everyone.

He said everyone should have it over 100 to feel well. Now I do not know if he mean't over 100 in my range or any range but I found what he said really interesting.

Just thought I would let members know.

Written by
lucylocks profile image
lucylocks
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Ansteynomad profile image
Ansteynomad

It's good to know that someone's on the ball.

When mine was 16, with the range about the same, I was told by a haematologist that my blood was as good as his, that my ferritin level was 'unequivocally normal' and that my symptoms were caused by work-related stress!

lucylocks profile image
lucylocks in reply toAnsteynomad

Hi

16 is shockingly low, have you managed to get it up now.

lucylocks profile image
lucylocks

My husband was with me and when we came out I said did I hear endo. right and he said yes he said it needs to be over 100 for everyone.

silverfox7 profile image
silverfox7

My ferritin is over a 100 but results come back saying ferritin levels inaccurate if infection present so not very helpful!

marmitelion profile image
marmitelion

So no wonder I feel rough at 12! 12 is the bottom limit where I am and they just say its in range so you are fine! I want your endo!

lucylocks profile image
lucylocks in reply tomarmitelion

He is in East Yorkshire, if you're anywhere near let me know and I will PM you.

deniD profile image
deniD

Mines 19 normal! Ha

lucylocks profile image
lucylocks in reply todeniD

I feel bad at 65 so you must feel awful.

deniD profile image
deniD

Us thyroidies get bittom if barrel care! Cos there's that many if us I guess! Could at least give us info to treat ourselves if we want. To instead of leaving to suffer!

lucylocks profile image
lucylocks in reply todeniD

That's true, do you live anywhere near East Yorkshire, if so I can PM you his name.

sued007 profile image
sued007

mine was 17 just had iron infusion x2 at hospital-so will wait and see if it increases

lucylocks profile image
lucylocks in reply tosued007

Hi

Many daughter's has been 9 and the Dr. just gives her iron tablets. I told her to go back and ask for a full iron panel and the Dr. did say if it comes back low they will look at infusions.

This has been going on for nearly four years though.

When my endo. said it should be over 100 I said to my daughter if the full panel comes back low we are going into see the Dr. and complain as to why nothing more has been done before now.

Hope you feel better with the infusions.

sued007 profile image
sued007

mine has been going on for a few years too and i have been on iron tabs 3times per day for a year- they tested me for celiac as thought it might effect absorbtion ,but was negative- it is a mystery!

lucylocks profile image
lucylocks in reply tosued007

Hi

My daughter does have celiac but sticks to a strict gluten free diet.

Her blood test for celiac came back negative but she then had an endoscopy and was diagnosed by this.

Her ferritin still stays low though.

Not what you're looking for?

You may also like...

Endo decrease my T3 for over medication?

Hi everyone ❤️ Well I'm not surprised I'm writing this post, on my last thyroid blood work being:...
birkie profile image

Endo says 100% graves.

Hi all i had a telephone call late afternoon on friday from my endo- following a recent...
Rmichelle profile image

TSH over 100, undetectable T4 & T3

I am newly diagnosed and new to this forum. Just wanting to ask for any input concerning my levels....

TSH over 100 and on steroid inh

Hi I have been struggling with my breathing since August last year. Doctors thought it was my cold...
LottieAnne15 profile image

How stable should TSH be?

Hi. I have a few things going on that I'm getting checked by the GP, but they keep refusing to...
SwanOfBlack profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.