Low cortisol level ?: Persuaded doctor to do this... - Thyroid UK

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Low cortisol level ?

lola1956 profile image
23 Replies

Persuaded doctor to do this blood test it came back low..140nmol/l (200-700)..now being fast tracked to endocrinologist. .He thinks Addison disease but I'm researching as I think not !!! Any ideas ...hypothyroidism on 75 levothyroxine but just today up to 100

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lola1956 profile image
lola1956
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23 Replies
lucylocks profile image
lucylocks

Hi

My daughter had her cortisol tested and it came back at 46. We were obviously convinced she had Addisons disease but when she had the Short syncathen test with the endo the first test came back at 220 second four hundred and something and third test six hundred and something so the endo said that rules out Addisons. When I said yes it rules out Addisons but not Adrenal fatigue he said yes she could have Adrenal fatigue but we do not treat it.

She has now seen a Nutritionist and she got her to do the Adreanal saliva test and it confirmed Adrenal fatigue. She has now prescribed her Dr. Wilsons Dynamic Powder. She only started it a few days ago so it is too early to see any improvement yet

Best wishes browny.

missdove profile image
missdove in reply tolucylocks

Hi there, I would be really interested in how she gets on with the powder, when are there meant to be signs of improvement...Please keep us posted oh and fingers crossed...D :-)

lucylocks profile image
lucylocks in reply tomissdove

Hi

Please see my reply below to lola1956

Of course I will keep you posted.

missdove profile image
missdove in reply tolucylocks

That's great please do...Hope it kicks in soon :-)

missdove profile image
missdove in reply tolucylocks

Just wanted to know how your daughter is getting on with the powder, hope there has been an improvement...Best wishes Dee

lucylocks profile image
lucylocks in reply tomissdove

Hi

Sorry to say no not much improvement, she did feel a couple of times she was improving but then slipped back.

She does have other things going on though, she also has candida

and the Nutritionist is going to get her something for this.

She also has celiac disease and sticks to a strict gluten free diet but has now started with stomach problems again.

So just because it hasn't worked for her it does not mean it won't work for someone else.

Hope you are feeling better.

missdove profile image
missdove in reply tolucylocks

I have done the candida diet before, pretty intense but works wonders...I am looking more and more at my gut health as I have finally realised the importance of it and the connection to better health...There sadly is no quick fix for us, but I wish you both well on your journey to better health...Best wishes Dee

lucylocks profile image
lucylocks in reply tomissdove

Many thanks Dee, wishing you well too.

lola1956 profile image
lola1956

So glad your daughter does not have Addison s disease ..yes I'm going to have syncathen test as well..I think I have adrenal fatigue too but doctor won't discuss the possibility but I don't have symptoms of addisons. ..do you mind me asking what symptoms your daughter has

lucylocks profile image
lucylocks in reply tolola1956

She has exhaustion, just wants to sleep all the time, feeling cold especially feet and hands, depression, aches and pains, constipation. She also has really low iron levels.

She also had a stool test done with the nutritionist and it shows she has candida, which can give a whole host of symptoms so nutritionist is also going to get her something for that.

lola1956 profile image
lola1956 in reply tolucylocks

Oh dear she sounds like me ...poor thing..I wish her well and would be interested in finding out how she does on the dynamic powder...keep in touch please ..best wishes lola x

lucylocks profile image
lucylocks in reply tolola1956

Yes Iola I will keep you posted.The Nutritionist did say she would feel worse before she feels better which obviously is the last thing anybody wants, and this is in fact happening. I have just been to see her and she said she does feels worse and just wants to sleep. I have said to hang on in there as maybe this proves the powder is working (worse before better)

I have told her to get in touch with Nutritionist to ask how long before she will feel better as she did not say initially.

I will post when there is an improvement.

lola1956 profile image
lola1956 in reply tolucylocks

How old is U r daughter?

lucylocks profile image
lucylocks in reply tolola1956

She is 32, she has two small children so you can understand how hard it is for her.

My husband who has recently retired and I help her as much as we can, but I am hypo and still having problems myself. My husband has very low B12 so things are difficult at times.

lola1956 profile image
lola1956 in reply tolucylocks

Same age as my daughter it must be so hard with small children ..I'm alone so it's easier ..your all having such a hard time ..I hope this works for her and that your all on the road to recovery soon ...best wishes to you all lola x

lucylocks profile image
lucylocks in reply tolola1956

Thanks lola, it can't be very nice for you when you are on your own and feeling awful.

Hope you soon find a solution, I will keep you posted about any improvement with my daughter to let you know if the powder is working.

Best wishes browny

lola1956 profile image
lola1956 in reply tolucylocks

Hello browny hiw is your daughter feeling? I hope she's a bit better now ...best wishes lola x

lucylocks profile image
lucylocks in reply tolola1956

She went out for a meal last night with her husband works company and enjoyed it, but she is tired today. That's a good sign she got ready to go out and had a nice time. I will keep you posted of any improvements.

How are you feeling.

lola1956 profile image
lola1956 in reply tolucylocks

Oh im glad she's showing sign of improvement. .I'm very tierd was out for 2 hours in park and pay for it ..getting worse every day really but may try a nutrionist if I can afford best wishes to you both lola x

lucylocks profile image
lucylocks in reply tolola1956

I saw a nutrionist last week (the same one my daughter saw) she has ordered the saliva adrenal test which also includes a test to check if I am converting T4 to T3 and a stool sample test which tests for various things to check for gut issues.

She has also advise I cut down on gluten and increase my B12 Vit D and iron supplements. She is very good, much more thorough than my G.P.

Let me know if you decide to see one

I will keep you informed on any progress with my daughter and myself.

Best wishes browny

lola1956 profile image
lola1956 in reply tolucylocks

Do you mind me asking roughly what is the cost per visit ?

lucylocks profile image
lucylocks in reply tolola1956

She charges £35 which is suppose to be for one hour consultation but I was with her 1 hour 45 minutes and she did not charge me anymore. I think her follow up visits are £18. I live in East Yorkshire, (not sure where you live) but I understand things are a lot more expensive down South than here up North

lola1956 profile image
lola1956 in reply tolucylocks

Yes lol I'm on the south coast but il have a look and see what's around ..thanks for your help ..lola x

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