I'm having RAI and am intending to stay a few n... - Thyroid UK

Thyroid UK

141,198 members166,430 posts

I'm having RAI and am intending to stay a few nights away from the family (children 15 and 17). I live in France

lizmag profile image
14 Replies

I'd appreciate any guidelines in English anyone can provide as to how often to flush the loo, really how long you should stay away from adolescents and when, finally, someone can give me a hug again! I've got the French guidelines and they say that I need to stay at least 2 metres away from all under 18s for a week. We'll do our best

Written by
lizmag profile image
lizmag
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Clutter profile image
Clutter

These are the instructions I had from the nuclear physicist following 100mCi I-131:

1-24 days - Avoid close contact with pregnant women and under 18s

1-12 days - Avoid close contact with people. Journey by public transport not to exceed one hour in any one vehicle, sit in back of car. Keep 1 set cutlery/crockery washed separately from other utensil & don't prepare food for others or go to dentist, hairdresser, pubs, clubs & cinemas. Drink plenty of fluids & avoid splashing urine. Double flush toilet. Shower frequently.

lizmag profile image
lizmag in reply toClutter

Thanks so much for that. I've been told seven days so I presume all is related to the dosage.

Clutter profile image
Clutter in reply tolizmag

Yes it is. On 100mCi I was in isolation in hospital for 3 days until level dropped to 20mCi. When I had follow up 30mCi for whole body scan, there was no isolation and restrictions were lifted after two days.

Close contact doesn't mean don't be in the same room. Just avoid physical contact as much as you can.

galathea profile image
galathea

Are you sure there is no alternative to rai? Its a bit barbaric. What's up with anti thyroid meds or at the least a proper operation to remove the gland?

lizmag profile image
lizmag in reply togalathea

There are alternatives but I was diagnosed 17 years ago and none of them have worked (apart from surgery which, even in very pro-surgery France, they are not recommending).

Majella profile image
Majella

Hi had rai on Monday was clear on Friday was isolated from every one for that time in hospital tray for food - hatch door then home had teenagers and 6 yr old hug no problem don't sleep or spend unnecessary time common sense prevail time out for u to catch up on sleep n reading main concern is for u not to come in contact with ladies in early pregnancy. Hope this helps.Had it 6 years ago in Ireland ,no big deal u a mother with teenagers u need the rest.

lizmag profile image
lizmag in reply toMajella

Thanks for this, I'm trying as hard as possible to stay positive about it all and this is really helpful

lizmag profile image
lizmag

Over 10 years on ATDs and I'm not really okay at all...

girl66 profile image
girl66

I was told to suck lemon flavoured sweets after 24 hrs I think, to prevent damage to saliva glands. Also I drank all the huge jugs of water they gave me to flush it through.

It's not a nice time but you'll get through it. Lots of double loo flushing for about 2 weeks I think .My teenage daughter split up with her boyfriend at that time and I had to ' instruct' my husband to hug her when she wanted to hug me! Good luck xx

deb25426 profile image
deb25426

I was told to sit the other side of room from EVERYONE. I slept downstairs away from hubby. My children were adults and so they just went to work and then in their rooms when they came home. Even the cats couldn't come on my lap!!!! But they advised me that the loo needs flushing twice( once after a P) but a room length away is what I was advised for 5 days. X

deb25426 profile image
deb25426

Oh and not to prepare food for anyone. No public transport. No work for a week!!,

My then partner refused to sleep in the spare room, or to chauffeur while I sat in the back seat and nothing bad apparently happened to him. Fortunately I work from home and drive, so it wasn't a big hassle.

lizmag profile image
lizmag

Thanks to all of you. It pretty much corresponds to what I have been told, and I presume that you get progressively less radioactive as the time in quarantine progresses.

Clutter profile image
Clutter in reply tolizmag

Yes, you do. That's why drinking copious amounts and frequent showering is recommended to flush it from your system. Have you been told to avoid foods with iodine in? I was craving sea food after my scan.

Nuclear physicist advised precautions are in view of what we don't know today that may have repercussions in 30 years. I let my dogs sleep on the bed but stopped them licking me.

Not what you're looking for?

You may also like...

Quite new to T3 few questions guys I am in the UK

Hi, I am at my wits end, had total thyroid removal in 2018 due to cancer but really struggling...
Blanche1960 profile image

I am having radioactive iodine next week how long will I have to stay away from my 24 week pregnant daughter and my 2 grandsons 9 and 6yrs

I am getting conflicting advice from Consultant and GP and am feeling very confused and, to be...
Diskewen profile image

Just been diagnosed with having hypothyroid. Really scared I'm not going to be able to live a normal life achains look after my children

Can anyone offer me some hope. I've read up loads over the last fews days and everything seems like...
kingyl profile image

I cannot maintain good relationships anymore with family, friends, colleagues due to the deterioration in my health, am I the only one?

I have been unwell now for just over 4 years, and like a lot of us on here I have totally shoddy...
missdove profile image

New BTA Guidelines May Actually Help

The British Thyroid Association have published some new guidelines for doctors, patients and...
lynmynott profile image
Partner

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator
Jaydee1507 profile image
Jaydee1507Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.