Thanks for everyone's support on my last post. I saw my MP this morning. I'm a political cynic, so I didn't go with any political expectations. I went because I feel the more people that say something the more we raise awareness.
He'd done his homework and knew who I was. He said he would have no problem with referring people to my website - he even suggested that my story was one that should be told to a journalist.
He then suggested that I should think about talking to the Parliamentary Committee on ME. Sadly there's no way that I am well enough to even think of travelling to London, but maybe in the future I might. Who knows.
He asked what did I want him to do - and I said that as well as looking at proper testing for people diagnosed with ME/CFS I would like him to raise awareness of the lack of treatment for people with adrenal issues, which are totally unrecognised. I referred him to Dr Chandy's video on youtube.
The meeting was as positive as I could have hoped for. I have no idea if anything will come of it, he's an MP after all!