Been to see an endocrinologist and was told it's the gland behind the thyroid that is making me feel so ill.

[Doubledee]

I have got a large lump that appeared over night and is getting larger and he has told me that this gland produces fatty deposits on joints any where in the body. Also I have one on my chest bone that is also getting larger but he just dismissed this one. Am now waiting for blood results for medication. The doctor gave me 15mins of his time and was not very fourth coming with any explanation. I have been ill for so long and feels unwell most of the time. Do not now what a proper night sleep is. Come over so exhausted some times which stops me going out. Has anybody else getting these lumps.

[Jackie]

Hi First phone Endo`s secretary for a copy of blood tests + ranges , and his letter to GP,.Did you have an ultra sound of the thyroid? You need one, although that may be negative, if it is not and nodules, they need a biopsy. Have the ultra sound at a large hospital, where they are the best for scanning.

Did the endo suggest an infection?

Thyroid make sure at the very least you have had tSH, T4 and Free T3 tested.

Then consider what you should do, this does not include doing nothing It even may be worth finding a brilliant endo yourself, then asking for a new referral.

Vest wishes,

Jackie

[Doubledee in reply to Jackie]

a few seconds ago Doubledee

Thanks for your support. Have been getting really bad chest pains and down my arm have ended up in hospital. They are looking into my heart to rule out heart desease. Will not look into my thyroid problem as being delt with another hospital.

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[Jackie in reply to Doubledee]

Hi Sorry to hear that, but best t to play safe.. i hope you are on a permanent Cardiac monitor, rather than just having E.C.G`s, more likely to have a diagnosis like that.I am not impressed by no thyroid tests. Most cardiac consultants, always check a thyroid, it is part of their admittance tests, because of the well known interaction.They will not treat it but just diagnose and test.You could at least, if not done, ask them to do your tSH, T4 and Free T, normal routine any way If put on any Beta Blockers, never take them until after the bloods for thyroid. Amioderone, also actually lowers the thyroid, ie makes it worse. If on that, do not delay taking, makes no difference and would be dangerous.

I hope you have the necessary tests , and soon. Once in patient they do not rush them! Which is most annoying.

Someone has written about parathyroid, PTH, first test is blood am, for PTH, corrected calcium and vit d, if all well over range, or 2 and D high for you, then a nuclear scan+ CT and ultras sound. It is quite unusual,

All the best and do let us know how you get on.

Jackie

[smileplease]

I'm sorry this reply is a little vague but in my research into my thyroid issues only last week I came across something about the gland behind the thyroid and problems with it. I had never heard of it so ended up reading into it out of interest. I know you prob already googled it but this is what I came across just in case you hadn't seen this parathyroid.com/parathyroid...

Good luck wish could give you more advice Xx

[Doubledee in reply to smileplease]

Thanks for your support. Have been getting really bad chest pains and down my arm have ended up in hospital. They are looking into my heart to rule out heart desease. Will not look into my thyroid problem as being delt with another hospital.

[humanbean in reply to Doubledee]

I had lots of problems with chest pain. I solved my problems by taking T3.

Do a Google search for "Low T3 Syndrome". It may be relevant or of interest to you.

The problem with low T3 is that getting your T3 levels tested by the NHS is very, very difficult. Most labs will refuse to do it if your TSH is "normal". In the end I got fed up of the NHS fobbing me off all the time and I paid to have thorough thyroid function tests done privately, and now I buy my own T3 online. My chest pain vanished within two days of taking T3, and hasn't returned unless I've been late with a dose or forgotten a dose of T3. And even then the pain has been very mild compared to what it used to be like.

[bamy in reply to humanbean]

what T3 did you buy withut a prescription?

[bamy]

thank you