I have just wasted a few months, effort, hope and £500 seeing an endo privately. after 2 visits - she told me I would just have to slowly increase levo - by one quarter of 25mcg per day [I currently tolerate just 25mcg daily].
I have been hypo for nearly 30 years -have hashimotos. I have tried this suggestion many times and end up feeling so bad I have to drop dose back to 25mcg. Its happened again.
This private endo whom I saw at a private hospital gave a pretty poor service. Follow up letters were not sent to me or GP and I had to chase these up both visits. Had to chase for receipts. Spelt my name wrong and had written incorrect info on case notes!
My GP is very conventional and has not come across any other treatments for this condition. Meanwhile I get prescribed no end of meds for all the resulting conditions I am suffering from. I take as few as I can get away with! The diagnosis 2 years ago of fibromyalgia - for which I have elected to take no meds - has not helped.
My GP wants to refer me to an NHS Endo for another opinion. I have been to Addenbrookes Cambridge a couple of times over the years - end up seeing registrars or juniors. Last one I saw spoke such bad English could hardly understand him..
So wonder if there is any chance there is a specialist in Suffolk or Cambridge area.... OR ANY private endo who may be able to help. I have wondered about seeing Dr Skinner.
The only other option is to self medicate - I am nervous to do this - and I do not know how to obtain Armour thyroid to give it a trial.
Any input or advice would be appreciated.