Thyroid UK
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I need a little help/advice re dosing please and also whether to see an NHS endo. Thank you

I am currently taking 25mcg of T3. It has taken a long time for me to reach this dose as originally I could not tolerate thyroid hormone which Dr P thought was most probably due to my receptors becoming very blunted as I have been left untreated for years. I had to start by crushing 6.25mcg in a glass of water and sip slowly throughout the day and build up very slowly. From last week I now manage to take T3 crushed but without water. Two months on and I now take 12.5mcg at about 6.30am, 6.25mcg at about 10.30am/11ish and another 6.25mcg at about 3pm ish. I know I am still very under medicated and feel I need an increase but am not sure exactly where to add in another 6.25mcg? Any suggestions guys?

Also my GP has referred me to an endo in a hospital of my choice (suggested by someone on here) but he has written to me and would like me to go for some blood tests the week before I see him in June. This would mean I have to stop the nutri adrenals I take (I have started to reduce them already four down to two) as amongst the tests are adrenal hormone ones but I would not stop the T3. I was confident about this but am now wondering if I should move the appointment to another time or just go for it? I asked for this referral as felt I needed to raise this topic once more with the NHS rather than being continually fobbed off and told its ME/CFS and left to deteriorate like so many others without treatment plus I’m getting into more debt. I was confident about it but now don't know if it's worth it!. My family are saying it’s up to me which I know but I’m just so unsure of it all having had such a rough ride with the NHS and some endo’s over so many years and just wanted some thoughts/suggestions/advice.


3 Replies

Firstly can I ask why you don't increase one of your 6.25mcg doses up to 12.5 instead of trying to squeeze in another dose? Is there a reason for this - you now seem to be able to tolerate a dose of 12.5 so is there a reason that you wouldn't be able to take two 12.5 doses and one 6.25 dose through out the day?

Secondly although I don't know much about nutri adrenal and whether you should stop them before adrenal tests I do know that taking T3 before a TSH test is likely to give a false reading of your thyroid blood results. If you don't want a high T3 reading and a low TSH reading (which could send your GP into a spin) then a gap of at least twelve hours (possibly longer) would be beneficial.

If you are feeling much better under Dr.P can I ask why you are now going to see an NHS endo again?

Moggie x


Thanks Moggie for taking time to answer. Gosh I can't see the wood for the trees sometimes and always seem to come on here when I'm at my foggiest and most dim. Yes I was thinking of another 12.5 dose and not necessarily adding in another dose though my question does read that way. Sorry I meant not stop t3 until day of test as I know not to take any beforehand. As to seeing an endo well it was to see if I could actually get a diagnosis of hypothyroidism with support closer to home as my NHS medical records state ME and I'm not sure if I can afford to keep self medicating as not worked for 3yrs used my savings and partner has lost his job.


Would your GP not supervise you whilst you are self medicating - I know GP's like this are rare but thought I would ask. Have also sent you a private message regarding T3.

Moggie x


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