Hi All,I have a few questions for those who suffer with this particular disease.
I was diagnosed April this year,and don’t seem to be free from pain since then,I’ve had GPs in,been to A&E a few times even had a couple of stays in hospital. Until I had this disease I hadn’t had an antibiotic in 15yrs,now I never seem to be off them. I’ve lost weight,but most of all it’s the pain,and now it’s affecting my sleep.
Has anyone got any good suggestions what I can do to help myself with this forever pain. It’s absolutely draining me.😢. Any suggestions will be appreciated.
Hope you all have a pain free Christmas 🎄🥂
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Breathless1943
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hi , I’m the exact same and I was diagnosed in April 2024 to and have retired everything bout nothing seems to help and your right it’s soo draining this illness but I get a little relief taking one turmeric and black pepper capsule every day I got from local health shop anything worth trying good luck 🤞🏻
Maybe a complete switch to Nutritional Therapy, especially after you only seem to be getting any relief from some options within that? See my reply to OP just now.
Hi and yes constant pain I haven’t had a good nights sleep in yrs and now have temenus as well the constant feeling you need to poop nightmare scenario how you feeling better and happy Christmas 🎄
Hi,Jacks back, you’ve hit the nail on the head exactly the same,I spend more time in the bathroom than any other part of my home. What is temenus? Have you tried a good probiotic if so will you let me know if it helps. I’ve got to the point I don’t like having visitors because 1 I’m always going to the loo.2 because I feel chatting and trying to put on a smile makes me feel worse. Have you been given any pain killers?
Tenesmus is the constant feeling of needing to poo and yea I have tried probiotics but they made me pee too much and affected my bladder so really I’m in a no win situation and nothing more doctor can do just have to keep trying different things till one day God willing we find a cure 🙏 take care and stay safe
Thank you. I have finally found someone exactly like myself. It drives me crazy,I can’t sit through a whole film or evening without up and down for the loo. And when visitors come they don’t see much of me. Food another problem I go from diarrhoea to constipation. It’s a never ending battle. I really empathise with you,and god willing someone will come up with the answers.. bit late for me,
Hi,Jackback,hope you don’t mind me getting in touch with you again.
It’s just that it’s uncanny that I’ve found someone just like myself. My hubby told me to get back to you,to ask you what you take to relieve the pain. The reason being I’m really struggling now with the pain,it’s no longer bearable it’s getting unbearable,and my mental healths getting worse I’m forever crying,and believe me that’s never been my style. I’m also getting to a stage when Temazapam can’t get me to sleep.
The other thing I meant to ask you was,do you tend to loose your balance,and at times your legs and feet have a life of there own wher they shake. I really do hope you tell me no,because it’s no fun. Hope your doing better than me🙏🏻
Sorry to hear your in so much pain but I have been taking doxycycline for a flare up and ibuprofen for pain and my legs are fine I just get sciatic in my bum cheeks now and then I recently got diagnose of hemmeriods caused by my diverticulitis so I now taking diosim which really help my piles but you cannot take them with anti depression tablets or antibiotics so I off them till my 7 day course of diosim is over I think you should check back with your doctor for the pain and your legs as it sounds horrible Good luck and take care
Thank you Paul for replying. I had piles years ago when I had the kids,not fun are they🙄but I feel nothing from them now they have just left scars. I take an inflammatory tablet for rheumatoid arthritis I was told I couldn’t take them with antibiotics,so that messes me up.
Back to pain my GP gives me oramorph ,but it dose nothing for me, but constipate me plus my GPs are useless,they don’t give you enough time to express your concerns. As you’ve probably experienced no one seems to have time for us now. I don’t know but I was recommended by a GP peppermint oil for the toilet might be worth a try for your piles. Also you could try germaloids there very good. Anyway time to try and eat something again. I’m wishing with all my heart we start to feel better soon.
Thanks Norma and your soo right doctors just seem to have no time or to take our illness as serious as they should which is very annoying and I will give peppermint a try and you keep at them doctors and God willing we will find something to help us
Sadly diagnosis of this and other abdominal conditions has increased significantly as a consequence of covid vaccination (google "diverticulitis after covid vaccine" for several scientific reports). So possible options include:
1. If you still remain committed to modern/allopathic medicine, try to use the above fact that "their" vaccine may have caused the problem to force their hand for better treatment.
2. Switch to Nutritional Therapy instead.
Enjoy Christmas as much as you can, in the circumstances 🎄
I had bowel issues, including diverticular disease way before covid or any recent vaccines so this is mis information. Yes there will be people that react to these vaccines but the majority of people who have them are completely fine.
I was replying to the OP. To save time/space and based on what she said was a recent diagnosis, I assumed she was vaccinated as most are and so vaccine injury is a possibility, as the scientific reports concur.
How is it misinformation that the vaccines can cause such issues? If so, all the different report authors (scientists) are guilty.
Re Nutritional Therapy, it's not just a balanced diet but nutrition (diet, supplements) and wellbeing focused on the health condition.
Sorry to disagree with you,but I I believe useroct,as both me and my husband seen a difference in our health,and what about all these sports people who have good diets?
Hi, having also been diagnosed with diverticulitus a few months ago after years of being told I had IBS and 'you can get something for that at the chemist' or 'just take painkillers' I sympathise so much. Even knowing specifically what you have doesn't necessarily help. I don't know what your doctor has prescribed, but I take Amitryptiline, which is used to help IBS sufferers - it's an anti-anxiety medicine, which also helps people who have trouble sleeping. I believe it's helping me, I take two each night, as I know my issues are mainly related to stress, but that's not the same for everyone, I know. Some people have side effects, but I was so desperate I'd try anything and fortunately I'm ok with it.Anyway, it's a horrible way to live and I'm sending much sympathy. Wishing you a Happy-as-possible Christmas, and hoping things will improve soon
Hi Boofer,I’ve just read all those messages and I quite honestly don’t think I want to live like this. I wake every morning thinking how bad I’ve got to suffer each day. I can cry at the drop of a hat,I think I’ve done more crying in the last 8mths than I have all my life.
I also have IBS and I also stress,but this pain is relentless. Thank you for the reply I hope you enjoy Christmas and a very much Happy new year.🎄
I'm so sorry to hear that - sending you hugs. I know you've been diagnosed, but it doesn't sound like they've given you any support at all. I know it's bad timing because of the holidays, but might you be able to talk to your doctor again? This is your life, and you shouldn't be suffering like this, crying every day, in constant pain. I've been there, I know how hard it is to get support. Can you ask to try Amitryptiline? It does help some people and it might be worth trying - you can up the dose if it doesn't work initially (with your doctor's support, obviously). I wish I could offer more advice, I can only wish you the best. Best wishes for the season and New Year to you too
Thank you,I have tried amitryptiline in the past and it does nothing for me. I think I have a strong constitution if that’s what you would call it,some of the pain sedative like Ormaorph I could double the dose and it would still have no affect on me. Morphine makes me sick. But a couple of months back I had a really experienced paramedic while we were in my house, he put a cannula in my hand and I told him morphine makes me sick,he said it won’t with me,and what it was ,was morphine and a sickness pill mixed ,slowly administered it was heaven it didn’t even make me sleepy, I told him I wanted to take him home with me😄. Anyway have you got any suggestions for a good probiotic,and I’m sorry for going on a bit especially on Christmas Day. Have a good day,and the best ever New Year.💖
Breathless1943 My diverticular pain didn't go away until I had a colonoscopy, during which they zapped a load of polyps and introduced some anti-inflammatory that probably only had very short-term effect. That was 3 and a half years ago - the pain has not come back since (keeping fingers crossed that it doesn't). Have you had an -oscopy to investigate the pain?
I had a colonoscopy some years ago,but since then I’ve had several CT scans with the dye,a Sigmoidoscopy a couple of times,and think there called mamegrams. I call them jelly bellies 🙄. My pain is chronic pain that I’ve suffered for at least 10-12yrs,which was fine,but over time it’s getting severely painful, then back in April this year,I was told I had Divercular disease and I had nothing but problems since then. I’m back and forth to the loo not always going just the feeling. A gentleman on the top of my post said his doctor had a name for it Tenesmus.
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