There's a surprise.

[BabsyWabsy]

After years of gut trouble, being diagnosed with a wheat allergy, I am finally being tested for coeliac disease.

[Linley]

👏👏👏

[IBSsucksallthetime]

I hope you get the answer you want, I also have celiac disease and all I wanted was answers. Unfortunately the answers don’t make anything better sometimes. But knowing is half the battle! wishing you better,

Brandy

[BabsyWabsy in reply to IBSsucksallthetime]

Thanks Brandy, you are right, answers won't change anything, but if I can just say I am coeliac, without long winded explanations of why I can't eat certain things, it might be simpler? We shall see. I suspect malabsorption has been ongoing for years.

[IBSsucksallthetime in reply to BabsyWabsy]

yes, at least it is an answer, and it does help to not have to explain over and over I agree. Malabsorption is a big problem with celiac you are right I am sorry that you are going through this. it does help just to know. Wishing the best for you.

Brandy 😀

[IBSsucksallthetime]

have you gotten results yet?

[BabsyWabsy in reply to IBSsucksallthetime]

Yes, all 'normal' apart from slightly raised cholesterol. I feel no better, but have a telephone appt on Wednesday. No answers yet. A bit frustrating tbh. Thanks for asking.

[Viklou in reply to BabsyWabsy]

you have to be eating gluten for at least 6 weeks before this test for it to be reliable xxx

[BabsyWabsy in reply to Viklou]

Yes, I know, and I hadn't. I was not prepared for that test at all. But in any case, eating wheat makes me really ill.

[IBSsucksallthetime]

sorry I know how it feels to not know. So you don’t have celiac? That’s great news!

[BabsyWabsy in reply to IBSsucksallthetime]

I think the jury is still out. I had eaten spelt spaghetti two days before, but that is not enough for an accurate test. No way I can eat wheat 3 times a day for 6 weeks. I am allergic to it.

[IBSsucksallthetime]

yes true, and they of course want you to be eating gluten to do the celiac panel… sorry hun

[BabsyWabsy in reply to IBSsucksallthetime]

I have done the Coeliac UK assessment which indicates I could be positive. I have sent this to the GP I am talking to on Wednesday, telling him that I had not prepared for the previous test, which came as a surprise. Fortunately, I can tolerate spelt & rye and have offered to do this in preparation for further testing. He is not a GP I have seen before, so no idea how he will feel about me being proactive.

[IBSsucksallthetime]

hope this works for you ! ❤️ Stay positive !