Rice 333

[Rice333]

I was diagnosed with proctalgia fugax has anyone have the same or know anyone with the same diagnosed.

Thank you guys

[Hidden]

Yer I get this a couple or three times a year. It’s like a deep Lower intense dull pain that’s right down the bottom. Comes on mainly at night. For me it comes on really quickly and last for a few minutes but seems like hours. Then totally disappears

[Rice333 in reply to Hidden]

Had 3 years 24 7 never goes ..no cure its a horrible thing to have .is what it is ...as they say

[Runefinder61]

No. I've never heard of it before . Off to Google it xxxx

[Hidden]

What’s your symptoms?

[Rice333 in reply to Hidden]

Pain in the rectom after going for a poo it has different patterns plus the rectom pain / sore .It's got 2 names proctalgia fugax @

Lavatory ani syndrome < is what i have .

Corse Anxiety brought on from stress , ibs and damaged neve endings at the bottom of the spin ... I have had all 3 at some point .. No cure .

It's not nice ....but have had good people helping me ..back surgeon.

Gastroentorlogist, Gp and physiotherapist.

Neve damage ( my ) Brought on from had work over the years .

It is what it is .I am still searching on updates weekly. I'm on Gabapentin for the neve pain ...doesn't work .

Andy .

[Kazzacrazy]

I get it every now and then it comes on mainly at night it's the worst pain ever shooting pains up my doo dah...the only way I can ease it is to lie on my back with my knees up or sit on the loo until I've had a bm which is always really small grit like 😪 I put mine down to my chronic constipation. I hope they can help you in some way or another 🙏

[Rice333 in reply to Kazzacrazy]

Thanks for that I only got constipation due to my ibs I have addressed this with fodmap diet. In fact I go poo mostly at the same time each day ish Have you tried fodmap diet for you constipation.

Hope you fined the course .

Andy

[Kazzacrazy in reply to Rice333]

Yes tried everything I've suffered with chronic constipation from being a child! I've recently been prescribed prucalopride from my gastroenterologist so hoping that will help in the long term.

[Rice333 in reply to Kazzacrazy]

Nice one hope it helps you ..all the luck in the world .Andy

[Pte82]

Rice333, I've had that and found high dose thiamine, I used Benfotiamine, and magnesium, I used magnesium glycinate based on my weight, has eliminated this in the middle of the night wake up call.

[Hidden]

I get that very occasionally, can only describe it as like someone shoving a red hot poker up your bottom, it's very painful, usually get it at night but I had it when I went for a walk the other day. I sometimes do the 'downward dog' Yoga pose which helps it to pass. It's horrible, don't know what can be done, it may be something we have to live with.

[Rice333 in reply to Hidden]

Hi Yes I have the pain 24x7 it's debilitating.

I have been referred to the NHS Connect pain clinic in Eastbourne.

There is treatment..its on going at the moment..watch this space .

Andy R

[Luisa22]

I definitely get this. I remember having it occasionally well before I got IBS, so I don't think it's because of IBS as such. It happens sometimes randomly more or less any time it likes, hurts like a b**ch, like no pain I ever had! I can go weeks or months without it though.

It doesn't seem to be related to bowel movements, flare ups, constipation, or any other thing. If it happens when I'm asleep it wakes me up for sure, but it can come any time of day or night,

The pain usually has me rolling around on the floor (or bed) but only lasts 10-20 minutes max. Then when it goes, it's gone completely. I have got used to how it is now, know there's no point taking a paracetamol or ibuprofen because it wouldn't have time to take effect. I have learned that all I have to do is wait it out. A shot of brandy has often sent it on its way and can work within about 3 minutes. But in the middle of the night I don't even want a drink, so I wait it out and it slowly disappears.

I remember I thought I had cancer when it first happened. The doctor said it was "proctalgia fugax". Wow, it's horrible.

One thing I haven't tried, and not sure these can be purchased without a prescription, and that is a Voltarol or painkiller suppository.

[Rice333 in reply to Luisa22]

Hi I have pain killers suppositorys they don't work.

I've had a epidural pian blocker with the pain clinic , didn't work ether ,I'm waiting for my 2nd appointment on the the 30th with the pain clinic .

Hope your coping.

Andy R

[Luisa22 in reply to Rice333]

Oh my gosh, Andy...for not even an epidural to help you, that is so bad. I am sorry you get pain like that.