Help where has cholestyramine gone?: I have been... - IBS Network

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Help where has cholestyramine gone?

Fudgerelle profile image
6 Replies

I have been taking Questran for years, horrible stuff but it works!...apparently there has been a shortage for some time, but now no pharmacy can get any for love nor money!...please any one out there in the same position, have you been prescribed an alternative? If so what? For me it's back to good old Imodium......also anyone eating sauerkraut? If so has it helped your IBS????

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Fudgerelle profile image
Fudgerelle
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6 Replies
Grateful71 profile image
Grateful71

Hi, I don't have a problem with getting meditation but I do know a few people who have, for them it's been a problem with delivery to pharmacies. I have started to introduce fermented food into my diet with varying results. I have IBS and diverticular disease. I have to take it very gently or a experience diarrhoea. I have always liked fermented and pickled food but I'm seem to be so sensitive to everything now. I'm persevering, I found just a little every day or other day has had the best results. Good luck 💛

Fudgerelle profile image
Fudgerelle in reply to Grateful71

Hi! Many thanks for useful reply....I have thought about taking sauerkraut....trying to get from Supermarket if I can get a slot!!!!!Love to know if you get some good long term results.

Whitesugar profile image
Whitesugar

My pharmacy changed me to a generic Cholestyramine made by Mylan. I haven't had any trouble getting that. Another alternative is Colestid which is completely tasteless and very grainy, but does the same job.

Misdiagnosed_82 profile image
Misdiagnosed_82

I haven't been able to get any for at least 18 months. I have an alternative prescription which doesn't work anywhere near as well and it took me over a year without meds to get the prescription.

golf99 profile image
golf99

I will be trying to refill mine soon. Was not aware it was hard to get. Will post if able/unable to obtain.

Ragey65 profile image
Ragey65

Suddenly I too am unable to get Cholestryamine or Questran. So my doctor instead prescribed me Prevalite. The weird thing was not that it wasn't in stock but that the NDC number was getting blocked by the FDA. Today I have reached out to the manufacturer Sandoz and to the FDA. Both are investigating and say they will get back to me on this matter. Why is the question I am seeking.

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