I've been struggling both physically and mentally since July 19.
I became unwell very quickly, basically overnight, with diahorea, nausea, discomfort and pain (right abdomen area / under ribcage). In total I have lost 22kg in weight.
My BM type and quantity varies day to day, it's like a lottery (not the one I wanted to win) as I never know what's coming next! Some day's I can have a BM 2 - 3 times and some day's, I can spend the entire day running back and forth to the toilet.
I can need a BM very quickly. On a scale of 1 - 10, where 10 is I have to be sat on the toilet, I can reach 10 very quickly with very little notice.
My stomach sounds like it's constantly talking (sometimes shouting) to me... the rumbles and noises are obscene!
You can see what I believe is my intestines moving like a snake... twisting and turning! It scared the hell out of me the first time it happened. My doctor just said that it can happen... end of! No explanation.
I feel I'm constantly thinking and worrying what's going to happen next. I'm constantly worrying about where is the nearest toilet? What am I going to do if I need the toilet and and cannot find one? I worry about what I'm eating? and being honest, sometimes it's easier for me skip meals or only eat a small amount if I'm not at home.
I want to be able to take a 'magic pill' to cure me which I know doesn't exit.
I don't feel I have good communication with my doctor and I honestly feel that she thinks I'm waisting her time. I've been told that she believes that I have IBS and that there are many more people out there that have far worse symptoms than me! I know that there are people suffering more than me, but I don't see how that statement is meant to help me feel better mentally and physically or help me deal with the issues I'm facing.
I get upset when taking about this to my doctor and I don't know why? It could be my embarrassment I suppose? My doctor is the only doctor in the practice so I don't have the option of making appointments with someone else.
I also struggle to get family and friends to understand what I'm going through, both physically and mentally. I've said in the past to people, unless you have experienced what I am experiencing, you have no idea what is going on. I try to explain but sometimes I don't think I'm communicating or expressing myself correctly?
I had all the blood and fecal tests possible which came back normal. I've had a colonoscopy with 12 biopsies taken, which all came back normal.
I wouldn't accept the IBS diagnosis initially, but over time I have come to accept it. I have periods where I'm positive even though I'm 'ill' but other periods where I feel I'm in a dark place with it all. I honestly don't feel that I'm suffering with depression but when I feel 'dark', I find the constant symptoms hard to deal with and I become quite upset and negative.
I'm sorry for the long post, but I'm hoping that hearing from others in a similar situation to me may help to shine some light on a dark day.