My SIBO, CFS, IBS recovery plan: Hello Everyone... - IBS Network

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My SIBO, CFS, IBS recovery plan

dh2909 profile image
25 Replies

Hello Everyone! My name is David. I have suffered from chronic fatigue for many years. I have recently tested positive for Methan Dominant SIBO. I have started a herbal and lifestyle protocol to clear out the bacterial overgrowth and get my life back. Please feel free to follow my blog and monitor my progress. I will answer what I can and share the knowledge I have learnt over the years to help you find your root cause and how to start healing.

healthzombie.co.uk/my-sibo-... - my treatment plan

healthzombie.co.uk/my-sibo-... - my daily journal

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dh2909
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25 Replies
userotc profile image
userotc

Dave, very intereresting indeed, well done. I will follow closely and I have private-messaged you regarding my recent SIBO results.

Rozzy46 profile image
Rozzy46

Such an interesting and helpful post - thank you. I too shall be following your progress and wish you all the very best. I also have IBS C and am aware that anxiety about it compounds the problem and then off I go in a vicious circel. Do you get anxious about your condition? I'm sure being proactive as you are is a good way to help ease the helpless feeling one gets....

dh2909 profile image
dh2909 in reply toRozzy46

I find that certain foods cause me to become very anxious. Going on a low fodmap diet for the last 2 weeks has been very helpful. If I have a large intake of cheese I also get anxiety.

I suspect the reasons for this is the fodmaps feed the bacteria. The bacteria then produce toxins and cause symptoms. As for the cheese, the casein protein can be very inflamitory and the inflammation could be driving symptoms also.

Thank you for the kind comments.

If you have any questions I will share with you what I have learned over the years

userotc profile image
userotc in reply todh2909

Dave. I also believe SIBO and most/all other conditions/symptoms (incl thyroid, but may need to whisper it here!) are only part of an holistic condition. My view (and of many others) is overall gut status is the driver. Hence I've had 3 microbiome tests to date besides SIBO & leaky gut.

dh2909 profile image
dh2909 in reply touserotc

Oliver, I am in total agreement with you. I feel there is far too much evidence to support the idea that the digestive function is at the heart of most health conditions. And we must find our unique healing path to correct them. Have you had parasite/candida tests done since your sibo test has been negative.

There is a 3rd possible sibo diagnosis (although rare) its hydrogen sulfide sibo. I'm not confident on testing procedures for this but if you have ruled out a candida/parasite infection. Are sure you have no food intolerances and test negative on hydrogen/methane sibo. It is another option to pursue.

Dr ruscio provides some insight into it here

drruscio.com/hydrogen-sulfi...

userotc profile image
userotc in reply todh2909

Dave. No further tests since the Sibo - which was actually rated POSITIVE by the lab although I am dubious, as per my PM to you. However, my latest microbiome test included candida (but negative i.e. below detectable levels) and parasites (positive i.e. high, for Blastocystis hominis). The consultant involved in presenting the results appeared unconcerned about blasto, stating "OK for some people". Despite that view, I may take further, natural antibiotics intermittently in future. Note that, in the past year or so, Ive had some of those that you listed eg Oregano, Berberine.

I hear what you say about H2S Sibo, have considered previously and will read the article you sent. However, as you know from my PM, I am currently wary about Sibo tests - and your lack of confidence on H2S increases my cynicism!. Also my symptoms are relatively minor - if indeed it is Sibo.

userotc profile image
userotc in reply todh2909

Dave. After now reading the H2S-SIBO article you sent (thanks), it hasnt prompted me to do anything else at this stage. My SIBO results may indicate a SIBO or LIBO H2S issue, eg a hydrogen flat-line after 160 mins, and/or some symptoms. However, the understanding of this phenomenon seems new and there is no specific test yet. If I have any more detailed points, I'll PM you.

Keep me/us posted along your SIBO journey.

dh2909 profile image
dh2909 in reply touserotc

I will keep you posted!

What symptoms do you have?

userotc profile image
userotc in reply todh2909

Mainly intermittent flatulence, H2S odours and diarrhea.

Husein profile image
Husein

Try accupressure. Go to sombody whi uses Aculife Machine near your home town. Go internet n write Acupressure.

Husein profile image
Husein in reply toHusein

It is TIEN ACUPRESSURE MACHINE

dh2909 profile image
dh2909

Acupuncture is something I have wanted to try. I may give it a go in the near future

oldfog profile image
oldfog

Neither of the healthzombie pages exist now :-/

dh2909 profile image
dh2909 in reply tooldfog

I took them down. The protocol I used didnt work. I am now working with a leading naturopath so will look to update them in the coming months

Pte82 profile image
Pte82 in reply todh2909

dh, review these links. Thiamine needs magnesium to become bioactive. The forms of thiamine to learn the pros and cons of each are benfotiamine, TTFD, sulbutiamine and thiamine hydrochloride. Consult with your health care professional before using any supplement.

eonutrition.co.uk/post/got-...

eonutrition.co.uk/post/when...

eonutrition.co.uk/post/thia....

Oscar091 profile image
Oscar091

Hello please could you reach my post I’m in I’m need for some advice for my SIBO x amber

dh2909 profile image
dh2909 in reply toOscar091

Hi Amber, how can I help?

Oscar091 profile image
Oscar091 in reply todh2909

Hello I’m really suffering after my antibiotics still no relief from symptoms. I’m now taking digestive enzymes. And can barely eat until the evening. My symptoms are nausea pain bloated stomach . I’m just waiting for another appointment with the gastroenterologist. Really don’t know what else to do. Amber

dh2909 profile image
dh2909 in reply toOscar091

Unfortunately we have been conditioned to believe that antibiotics are always the answer to bacteria.

In sibo this is not the case, and there is usually multiple underlying factors that have to be corrected before any herbals or antibiotics will help remove the overgrowth.

Taking antibiotics and herbs before these underlying conditions are resolved can make the bacteria more resistant and harder to remove in the future.

Kind regards

David

Oscar091 profile image
Oscar091

I’ve been on a low fod map diet for 3 months now still no results.

Pte82 profile image
Pte82 in reply toOscar091

Oscar091, have you used the probiotic s. boulardii? It's available at most pharmacies. My reply to dh2909 above contains information to control SIBO that should interest you in addition to the link below. Consult with your health care professional before using any supplement.

optibacprobiotics.com/profe...

Jenny3267 profile image
Jenny3267 in reply toPte82

I have severe SIBO and I think this was made much worse because I took a whole lot of probiotics which I believe are now stuck in my small intestine. I actually think probiotics are in some cases adding to the SIBO explosion we are seeing.

Pte82 profile image
Pte82 in reply toJenny3267

Probiotics have become a "gold rush" filling shelves with high priced bottles of empty promises hyped by billions and billions as Carl Sagan would say. Lost among them are honest products intended to "get you back on the road" after an event impacting the balance in the gut. What is and isn't in those capsules, pills and potions only and independent lab could tell and that unknown can become just a waste of money or worsen an already bad condition. The watch word is investigate before you invest your health care dollar.

cj20uk profile image
cj20uk in reply toOscar091

The Low FODMAP diet didn't help me either. I've also tried the Fast Tract diet which I thought would help but it didn't. I wish there was a simple solution to this!

Oscar091 profile image
Oscar091

Thank you so much I’ve just ordered the live culture you told me I’ll try anything at the moment for any relief . Amber

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